SADS Foundation :: Sudden Arrhythmia Death Syndromes Foundation

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Leading the Way to Save Lives

The Sudden Arrhythmia Death Syndromes (SADS) Foundation is a leader in education, research and advocacy for families and individuals at risk for cardiac arrhythmias that can cause sudden death in young people.

 
Welcome to Our New Website

We are proud to present this new look and hope it conveys our 2008 “focus on the SADS family” emphasis.

Historically, SADS was founded as a long QT syndrome (LQTS) family support and advocacy organization. But it is the intent of our Board and staff to assist all families to live and thrive with SADS conditions.

As the president of the SADS Foundation, Dr. Michael Ackerman, says, “I want all individuals and families regardless of age who are affected with a SADS condition—whether it’s the most common one of LQTS or one of the less common forms such as Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia (CPVT), or even short QT syndrome—to find sanctuary at the SADS Foundation.  Our organization wants to meet your needs as an individual and family with one of these conditions.  Where we are doing it well, we will continue.  Where we have missed the mark or have failed to devote enough attention, please let us know.”

 
SADS Updates
  • SADS Updates on ADHD and Arrhythmias available here .
  • Do you know your Family History? The genetic conditions Long QT and Brugada Syndrome dont just affect one person. Chances are, if you have one of these conditions, other members of your family have it as well. SADS would like to work with you in developing your Family History Chart and reaching out to other members of your , to make sure everyone stays safe and healthy. Learn more about our Family Pedigree Project here.
  • Worried about your iPod and your ICD not getting along? The Heart Rhythm Society has published new research indicating that digital media players like iPods and ScanDisks do not cause electromagnetic interference with ICDs or pacemakers.
  • SADS First Quarter Literture Review is available for download here .
  • Updated Care Plans for your child's school are now available in modifiable pdfs. Download Care Plans.
 

Sudden arrhythmia death syndromes (SADS) are genetic heart conditions that can cause sudden death in young, apparently healthy people. These conditions can be treated and deaths can be prevented. Warning Signs: family history of unexpected, unexplained sudden death; fainting or seizure during exercise, excitement or startle; consistent or unusual chest pain &/or shortness of breath during exercise.

My Child May Have SADS

If you are visiting our website for the first time and think you may have a SADS condition, you may find some help here.

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