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Leading the Way to Save Lives |
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The Sudden Arrhythmia Death Syndromes (SADS) Foundation is a leader in
education, research and advocacy for families and individuals at risk
for cardiac arrhythmias that can cause sudden death in young people.
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Welcome to Our New Website |
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We are proud to present this new
look and hope it conveys our 2008 “focus
on the SADS family” emphasis.
Historically, SADS was
founded as a long QT syndrome (LQTS) family support and advocacy organization. But it is the intent
of our Board and staff to assist all families to live and thrive with SADS
conditions.
As the president of the SADS
Foundation, Dr. Michael Ackerman, says, “I want all individuals and families
regardless of age who are affected with a SADS condition—whether it’s the most
common one of LQTS or one of the less common forms such as Brugada syndrome,
catecholaminergic polymorphic ventricular tachycardia (CPVT), or even short QT
syndrome—to find sanctuary at the SADS Foundation. Our organization wants to meet your needs as
an individual and family with one of these conditions. Where we are doing it well, we will
continue. Where we have missed the mark
or have failed to devote enough attention, please let us know.”
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- SADS Updates on ADHD and Arrhythmias available here .
- Do you know your Family History? The genetic conditions Long QT
and Brugada Syndrome dont just affect one person. Chances are, if you
have one of these conditions, other members of your family have it as
well. SADS would like to work with you in developing your Family History Chart and reaching out to other members of your , to make sure everyone stays safe and healthy. Learn more about our Family Pedigree Project here.
- Worried about your iPod and your ICD not getting along? The Heart Rhythm Society has published new research indicating that digital media players like iPods and ScanDisks do not cause electromagnetic
interference with ICDs or pacemakers.
- SADS First Quarter Literture Review is available for download here .
- Updated Care Plans for your child's school are now available in modifiable pdfs. Download Care Plans.
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