Thank you for your help in making the public aware of these heart conditions that may cause sudden death. As you know, conditions like Long QT Syndrome are treatable and children and adults can live happy, productive lives if they are diagnosed and treated. We hope that you will be able to make use of these materials to increase awareness in your community.
When you tell your story to the media (radio, magazine, TV, newspaper, newsletter, etc.), you are not only educating the public about the warning signs of a SADS condition, but also physicians, nurses, teachers, etc. For assistance with contacting the media including sample articles and other resources, contact us at firstname.lastname@example.org or call (801) 272-3023.
We love to know what people are doing in their communities, and want to be able to show others (our donors, Board of Directors, etc.) how you have reached out to others through your reports and stories. Please let us know how you used these materials:
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4527 South 2300 East, Suite 104 | Salt Lake City, Utah 84117