The Local Telephone Support Contact (TS). The TS volunteer has family members who are diagnosed with a SADS condition and can share their experience with you. They can ensure that you are familiar with common resources for diagnosed families and educate you regarding assistance provided by the national office.

The Local Network Contact (LN). In addition to sharing their personal experience with a SADS condition, this person has an interest in facilitating opportunities for families to meet and/or network. There is strength in numbers! Join efforts with local families and save lives in your community by advancing coordinated awareness activities.

If there is not a name listed for your state please contact Anne Maurer at Anne@SADS.org.  If you have any questions including the standard of care for the diagnostic process, treatment options, genetic testing, or physician referrals, please contact Anne Maurer at Anne@sads.org or 800-STOP-SAD

Fundraising. If you have an interest in fundraising and would like any assistance or ideas please contact Alice Lara at 800-786-7723.

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Alabama

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Alaska

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Arkansas

Fayetteville: Marissa Smith

Little Rock: Kristin Hether

Arizona

 Phoenix:   Dick Stafford  

California

El Dorado:  Debbie Purvis                           

Pope Valley:  Kathy Blum      

Costa Mes:   Lene Righeimer             

Colorado

Colorado Springs: Bill and Sally Layton

Colorado Springs: Glenda Stafford

Connecticut

Monroe:  Cindy DiMaria                

Delaware

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Florida

Panama City: Mandi Chesser, RN                             

Georgia

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Hawaii

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Idaho

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Illinois                

Lake Villa: Colleen Kausak       

Indiana                             

Franklin:  Jackie Renfrow           

Iowa

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Kansas

Emporia: Marsha Peterson

Kentucky                                 
 

Louisville:  Carole Yocum           

Louisiana

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Maine

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Maryland                                 

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Massachusetts

Methuen:  Claire Doyle                 

Michigan

Orchard Lake:   Denise Falzon                           

Minnesota

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Mississippi

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Missouri

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Montana

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Nebraska

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Nevada

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

New Hampshire
 

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

New Jersey

Media Contact: Trisha Stepkin

The support contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

New Mexico
 

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

New York                                                          

Rochester:  Becky Knowles

Huntington:  Bob Timm

Syracuse:  Sue Dietrich               

Staten Island:  Kathleen O’Connor

Glen Cove:  Brian Sutch

Shrub Oak: Maureen Schulman

North Carolina

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

North Dakota
 

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Ohio

Cleveland:  Karen Reynolds             

Oklahoma

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Oregon

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Pennsylvania

Boothwyn:  Dorothy and James Renner

Rhode Island
 

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

South Carolina
 

Greenville:  Anna Mitchell                                                                           

South Dakota
 

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Tennessee

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Texas
 

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Utah

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Vermont

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Virginia

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Washington, D.C.

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Washington State
 

Snoqualmie:  Nancy Adams     

Wisconsin

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!

Wyoming

The contact for this state is still being confirmed.  If you are interested in joining a local group as it is established, please e-mail Anne.  Thank you!