The SADS Foundation provides information to and education of medical professionals. Despite research findings and medical publications, genetic conditions that cause sudden cardiac death in the young remain largely hidden-not screened for and thus not diagnosed. As a result many children and young people continue to die each year unnecessarily. The SADS Foundation maintains an active physician education program through our network of researchers, who continually inform and train physicians to diagnose and treat Long QT, through seminars, conferences and medical journal publications. This is an important program in the fight to help prevent undiagnosed arrhythmias in families, which can result in death.
Distribute an informational newsletter and monthly enewsletter. Over 30,000 issues mailed yearly.
Quarterly Literature Review
Bi-monthly Medical enewsletter
Publication of the "Inherited Long QT Syndrome" informational pamphlet in English, Spanish and French and the "Acquired Long QT Syndrome" pamphlet.
Dissemination of recent genetic and clinical findings concerning LQTS and related conditions.
Physician Referral Network
Medical Examiner Contact Program.
Seminars and conferences for physicians and other health care professionals.
International SADS Conference: Preventing Unexpected Sudden Death in the Young
VIDEO--Genetic Testing for Long QT syndrome diagnosis: The FAQs--Dr. Michael Ackerman
SADS Safe Schools --includes Medical Emergency Plans for Schools and Care Plans for SADS kids
Family Pedigree Project
When a Child Dies Suddenly --includes specifics for pathologists and medical examiners
Genetic Testing for SADS Conditions --including insurance tips, letters of medical necessity
COPYRIGHT ©2011 Sudden Arrhythmia Death Syndromes Foundation
508 E. South Temple, Suite #202, Salt Lake City, UT 84102