Select Page

SADS Channel

The official blog of the SADS Foundation

One Long QT Journey

My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know for sure if it caused you to lose consciousness if you don’t have an EKG or some other kind of heart monitor hooked up...

Would you like to be a SADS Channel blogger?

Are you a patient affected by a SADS Condition? Are you a parent or sibling or other family member of someone affected by a SADS condition? Are you a doctor, genetic counselor, researcher, or other professional who would like to help contribute to a resource for SADS...

On This Day

If you haven't already I want you to take a look at that photo. It's special. Not because of what's there, but because of what isn't. Honestly this is a once in a lifetime photo, because the event in this photo changed my life forever. Have you figured it out yet? Let...

Finding my superpowers

The other day, while watching a wheelchair basketball game, my friend was talking about how one of the players ended up paralyzed. When she finished telling the story she said "I don't know what I would do in that situation. Would I keep going or just give up in...

Normal Life (except with LQTS)

Sometimes normal life involves taunting my dogs with donuts on a Sunday morning   Sometimes normal life involves having coffee in a hospital after having an ICD pocket revision.    I remember the day I got married.  It was hot and the tulle of my dress was scratchy...