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SADS Spotlight: Alison

Alison and her husband after competing in the 2018 USAT Duathlon National Championship! Name: Alison HegeAge: 30Which SADS condition do you have? CPVTWhen were you diagnosed? May 2016 How are you treated? 60mg Nadalol daily, Left cardiac sympathetic denervation...

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SADS Spotlight: Chevy

Chevy with his sister Zoiey Name: Chevy Mathis Age: 10Which SADS condition do you have? CPVT When were you diagnosed? February 2017 after a cardiac arrest How are you treated?Nadolol 2x daily, Flecainide 3x daily, and his “Iron Man Arc Reactor” AKA- his ICD What...

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Our LQTS Story

We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures.  We had no idea what the problem was.  His brain scans were good.  His pediatrician told me “oh, all 8 year olds faint now and then”,...

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