Shannon Cron, 38, has Long QT Syndrome Type 2. She was diagnosed in 2017. She is treated with a beta blocker.
How/when were you diagnosed?
I was diagnosed after the death of my 14 year old daughter in August 2016 who was the first in the family to be diagnosed.
What has been the biggest challenge you’ve faced in living with your diagnosis?
Biggest challenge is just living without my daughter knowing I’m still here and she is not.
What is one positive thing that has come out of your diagnosis?
My sister was able to get her youngest diagnosed and treatment started. I was able to get them a free AED.
What encouragement or advice would you give someone who has just been diagnosed with your condition?
Don’t let it stop you from accomplishing your dreams.
What does your day-to-day life look like?
We try to live life to the fullest. My younger 2 are genetically negative. We carry on Anastasia’s memory everyday. Whether at work, working out or home Anastasia is our angel that watches over us.
What are your favorite hobbies and activities?
Since being diagnosed I started taking kickboxing classes to help me get into better shape so I can still be here for my younger two children. I also recently got a chapter of The Compassionate Friends started in my area.
Want to be featured in the SADS Spotlight? Share your story by answering a few short questions. If you have a longer story to tell, or if you’d like to write about a specific topic, check out our guidelines for writers.