by Bridget McGaughey | Sep 17, 2018 | Brugada Syndrome, ICD, Long QT Syndrome, Support Groups
Bridget McGaughey, 37, has Long QT Syndrome and Brugada Syndrome. She was diagnosed in 2012 at age 32. Her treatment is an ICD. How/when were you diagnosed? I was diagnosed after a syncope episode in 2012. I did a face plant (ouch) in a parking garage after walking...
by Jasmine Wylie | Sep 14, 2018 | Announcements
In the summer of 2009, I was a recent graduate from art school, a waitress in a pub, and an intern at a museum. Life was full of promise and possibility and the usual anxieties associated with being a young person trying to find their place in this world....
by Roger Clifford | Sep 1, 2018 | ARVC, Sports/Exercise
Some positives & observations of now being a walker & not a runner: 1. When it’s 4:30 in the morning I don’t even know cause I’m still sleeping; 2. I don’t have to experience being 20 miles into a marathon feeling like hell & say, shoot, I still got...
by Kellie Moore | Sep 1, 2018 | Long QT Syndrome
On the way to high school graduation rehearsal, a classmate made an unusual confession. “I’ve never told you this,” he said. “But I’m really sorry about your heart.” Rather than feeling touched by his words, I felt a little insulted. As an optimistic 18-year-old, I...
