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Stephanie and her husband on a recent night out at the theater

Name: Stephanie Swor Festian

Age: 45

Which SADS condition do you have? Long Q-T Type 1

How are you treated? (Beta blocker, ICD, etc.) Beta blocked from 1992-2015, now beta plus ICD

When were you diagnosed? 1992, Age 18 after a cardiac arrest

How/when were you diagnosed? I had a cardiac arrest at 18 after being home for most of a week sick from my senior year of high school. I went to school that day to assist with an assembly I was in charge of. I passed out at school and then was taken to the ER to get checked out and had a SCA there. Was in a coma for 3 days before a doctor looked at LQTS.

What has been the biggest challenge you’ve faced in living with your diagnosis? Learning that being active is ok. In 1992, I was told no activity and now I can. I run half marathons now.

What is one positive thing that has come out of your diagnosis? I now think less of what I can’t do but more of what I can.

What encouragement or advice would you give someone who has just been diagnosed with your condition? It is scary, I won’t lie, but you can do life, even a normal life.

What does your day-to-day life look like? Often the same as anyone who doesn’t have LQTS. People get shocked when I tell them about my heart and the fact that my parents were told I was not likely to survive.

What are your favorite hobbies and activities? Running and spending time with my family.

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