Name: Chevy Mathis
Which SADS condition do you have? CPVT
When were you diagnosed? February 2017 after a cardiac arrest
How are you treated?Nadolol 2x daily, Flecainide 3x daily, and his “Iron Man Arc Reactor” AKA- his ICD
What has been the biggest challenge you’ve faced in living with your diagnosis?
Learning to restrict himself, and living with a HIE brain injury he got as a result of the cardiac arrest.
What does your day-to-day life look like?
School, Speech, OT, & PT therapies, playing with his dog, & video games.
What are your favorite hobbies and activities?
LEGOS, baseball with the Miracle League, no-contact karate, drawing and video games.
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