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Name: Joseph “Joey” Reinel
Age: 4
Which SADS condition do you have? CPVT
When were you diagnosed? Age 3 – after surviving a SCA
How are you treated? Medicine – beta blocker (propranolol) and anti-arrhythmia (amiodarone) and an ICD implanted Aug 2018

How/when were you diagnosed? 
He had a SCA in August 2018.

What has been the biggest challenge you’ve faced in living with your diagnosis?
He’s been a champ!

What is one positive thing that has come out of your diagnosis?
Learning to truly appreciate and enjoy each and every day and all the small special moments.

What encouragement or advice would you give someone who has just been diagnosed with your condition?
Life can change in an instant – enjoy yourself – find your happiness.

What does your day-to-day life look like? 
Like any other 4 year old’s day – play, learn, run around, watch Power Rangers, fight with his brothers – except he has to take medicine 3X a day.  

What are your favorite hobbies and activities?
Go go Power Rangers! Lol. He loves the Power Rangers. Playing/fighting with his twin. Building puzzles. Dancing. Singing. Riding power wheel ATVs in the yard. He (luckily) is not yet aware of his condition or that he’s different and we love it!


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