Name: CJ Heil
Which SADS condition do you have? Long QT Syndrome
When were you diagnosed? Oct. 2010
How are you treated? Beta Blocker (Nadolol)
What has been the biggest challenge you’ve faced in living with your diagnosis?
Knowing that even though it’s not visible, I am and always will be different from everyone else
What is one positive thing that has come out of your diagnosis?
I was sent to a camp for kids with heart conditions, Camp Joy. The camp was called Camp Joyful Hearts and I went for 9 years where I’ve met some of my best friends. Now I’m in my 2nd summer as a counselor.
What encouragement or advice would you give someone who has just been diagnosed with your condition?
Hit me up and I’ll be you’re number 1 fan and supporter. You can find me on Instagram.
Make sure you don’t waste away life, sitting on the sidelines. Enjoy life and get out there.
What does your day-to-day life look like?
I’m a full time college student, who teaches 2-3 CrossFit classes a day, volunteers 5 hours a week at the children’s hospital oncology department in Louisville, plays club soccer, and is involved in a fraternity.
What are your favorite hobbies and activities?
I love to workout/ do CrossFit, play soccer, volunteer, thrifting, going on random adventures in the woods or city, and anything coffee or tea related.
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