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Paula and her son

Name: Paula Best 

Condition: Long QT Syndrome 

Diagnosed: 1999 aged 17

Treatment: Beta Blockers – 160mg Propanol per day 

What has been the biggest challenge you’ve faced in living with your diagnosis?

When my son was born last August, he underwent genetic testing and it was confirmed that he also had Long QT syndrome and commenced Beta Blocker treatment. As much as I worry, I know he will go on to have a happy healthy life undefined by his condition.

What is one positive thing that has come out of your diagnosis?

Never to take life for granted and enjoy every minute. 

What encouragement or advice would you give to someone who has just been diagnosed?

That the life that you want is still possible, by being aware and making sensible adjustments you will go on to have the life that you want and do everything that you thought you could before your diagnosis. 

How has the SADS Foundation been helpful to you?

By broadcasting the FB live sessions with Dr Ackerman; not only have I learned so much about LQT and COVID-19, but I’ve learned so much about LQT syndrome in general.