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Name: Tenier Sims

Age: 43​

Which SADS condition do you have? Brugada Syndrome

When were you diagnosed? October 2018

How are you treated? Currently being monitored

How/when were you diagnosed?

I was diagnosed when I became so fatigued that I couldn’t walk, so I went to urgent care and from there I was told that I needed to go straight to the ER when they saw something on my EKG. From there I went to the ER and multiple test were ran and as I waited in the waiting area, an ER doctor came and said, “I believe you may have Brugada Syndrome.” I was later discharged and referred back to my Cardiologist and from looking at my EKG, it was clear and I was officially diagnosed by my Cardiologists on October 5, 2018.

What has been the biggest challenge you’ve faced living with your diagnosis?

The biggest challenge I face is becoming very fatigued at any given time. One minute I can be full of energy and the next second I’m so exhausted to the point I have to sit down for a while. I find my anxiety being high because in the beginning I was afraid to sleep because I didn’t think I was going to wake up.

What is one positive thing that has come out of your diagnosis?

One positive thing that came from this is that even with my diagnosis, I can live a long, healthy and prosperous life. Its not a death sentence because I choose to either beat the disease or let it beat me. I was born a fighter and I will never give up. My motto: I have Brugada but Brugada doesn’t and will never have me.

What are your favorite hobbies and activities?

Some of my favorite hobbies are spending time with my family, crafting, traveling and most importantly shopping.