Name: Karly Gonthier
Which SADS condition do you have? CPVT
When were you diagnosed? June, 2019
How are you treated? (Beta blocker, ICD, etc.) Beta Blocker, calcium channel blocker
How/when were you diagnosed? The day after my 13th birthday, I collapsed during a dance dress rehearsal. This was the 3rd time I had “passed out” like this.
What has been the biggest challenge you’ve faced in living with your diagnosis? Not being able to participate in summer activities and my favorite sports
What is one positive thing that has come out of your diagnosis? I got to travel to Minnesota to see Dr. Ackerman at the Mayo Clinic
What does your day-to-day life look like? In cardio activities always checking my heartrate, and always taking medicine day and night
What are your favorite hobbies and activities? Baking, and cooking, taking walks, spending time with friends
How has the SADS Foundation been helpful to you? I have been able to see others with my condition, older and younger.