Age: 58 years old
Which SADS condition do you have? Type 1 LQT
When were you diagnosed? Since 2008, over 10 years
How are you treated? Toprol
How/ when were you diagnosed? My diagnosis began through a routine primary care visit that discovered it through EKG abnormalities several times in office visit. Doctor referral was sent to cardiologist for further tests and exams and then genetic testing confirmed.
What has been the biggest challenge you’ve faced living with your diagnosis? The challenges I’ve faced with this diagnosis is not being able to do the things I used to do in my life prior to my diagnosis. Also, my strong faith in Jesus Christ helps me live with hope not despair.
What is one positive thing that has come out of your diagnosis? The one thing that I can say positive about being diagnosed early in my life.
What encouragement or advice would you give someone who has just been diagnosed with your condition? I try each day to live my life on purpose and I believe we’re here for a purpose. I believe in showing kindness and compassion toward people who cross my path. I love people and believe there are good people in all walks of life. My advice to a newly diagnosed person: remember that I would say to take it one day at a time. Live life with joy and peace in your heart and know you’re not alone.
What does your day-to-day life look like? My life is fulfilling and I enjoy each day that God has allowed me to live. My peace is my joy, not allowing the cares of the world weigh me down, instead I pray for peace on earth.
What are your favorite hobbies and activities? I like reading a good book of Christian Fiction and eating good foods, traveling to new places and seeing interesting things.