by Heather Darling | Apr 20, 2020 | Genetic Testing, ICD, Long QT Syndrome, Parenting, SADS Spotlight
Heather and her son Carter Name: Heather Darling Age: 33 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? A little over 20 years ago How are you treated? Beta blockers and ICD How/when were you diagnosed? One morning in fifth grade my...
by Danielle Wright | Apr 20, 2020 | CPVT, ICD, Parenting, SADS Spotlight, Sudden Cardiac Arrest
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
by Kerri Dyer | Apr 20, 2020 | ARVC, ICD, Parenting, SADS Spotlight
Name: Kerri Dyer Age: 38 years Which SADS condition do you have? ARVC When were you diagnosed? 2014 How are you treated? (Beta blocker, ICD, etc.) 2 different beta blockers and ICD fitted How/when were you diagnosed? Collapsed at home with pulse of 276 bpm,...
by Natalie Johnson | Apr 7, 2020 | ICD, Long QT Syndrome, Parenting, SADS Spotlight
Natalie in Maui on a snorkeling tour! Name: Natalie J Age: 27 Which SADS condition do you have? Long QT When were you diagnosed? August 2010 How are you treated? (Beta blocker, ICD, etc.) Beta blocker and ICD How/when were you diagnosed? I was diagnosed at 17...
by Elizabeth Napolilli | Mar 12, 2020 | Awareness, Genetic Testing, ICD, Long QT Syndrome, SADS Spotlight
Elizabeth is studying to be a Physician Assistant (with a passion for cardiology!) Name: Elizabeth NapolilliAge: 30Which SADS condition do you have? Long QT Syndrome- Type 1When were you diagnosed? I began treatment in about 2000 with beta blockers but my diagnosis...
by Tisha | Jan 30, 2020 | Advocacy, Brugada Syndrome, Connecting with others, Heart Hero, ICD, Parenting, Rare Disease, SADS Spotlight, Sports/Exercise
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
