by Jillian Cheape | Apr 25, 2019 | ICD, Long QT Syndrome, Managing Multiple Diagnoses
Annie was born in May 2005 eight weeks early, and with kidney problems and unilateral talipes (club foot). Before her first birthday, Annie had two corrective surgeries and a successful reposition of her foot. This however, left her with leg length...
by Stephanie Festian | Feb 5, 2019 | ICD, Long QT Syndrome, SADS Spotlight
Stephanie and her husband on a recent night out at the theater Name: Stephanie Swor Festian Age: 45 Which SADS condition do you have? Long Q-T Type 1 How are you treated? (Beta blocker, ICD, etc.) Beta blocked from 1992-2015, now beta plus ICD When were...
by Kennedy Cooper | Jan 4, 2019 | Conference, CPVT, ICD, Sudden Cardiac Arrest
Read Kennedy’s previous post for the first installment of her story. January 23rd. Some recognize this date as the day Richard Nixon announced an accord to end the Vietnam War, or the day LeBron James became the 7th and youngest player to reach the 30,000 NBA point...
by Shawna Montoya | Dec 20, 2018 | Camp, Connecting with others, CPVT, ICD, Long QT Syndrome
Back in 2016, I came across this special camp for kids with heart disease called Camp Taylor in Modesto, California. You see, I was in the midst of trying to digest the fact that my daughter had this thing called Long QT Syndrome and CPVT (yep—both) and that she had...
by Samantha George | Dec 17, 2018 | ICD, Long QT Syndrome
I have a life threatening heart condition called Long QT Syndrome (LQTS). I have an implantable cardioverter-defibrillator (ICD), a small electronic device implanted in my chest, under the muscle just below the collarbone. Its main function is to prevent sudden death...
by Alexis Holmgren | Oct 9, 2018 | Announcements, ICD, Long QT Syndrome
When we heard the 2017 SADS Conference was going to be held in Canada, it seemed like a sign for my mom and me as Canadians. In the past, we had not been able to get insurance to travel outside of the country after her sudden cardiac arrest 5 years prior. Since it was...
