by Carla Oxtoby | Nov 19, 2020 | Awareness, Connecting with others, ICD, Long QT Syndrome, Parenting
I was diagnosed with Long QT syndrome in July 2001, I was 23 years old. I decided to share my story in hopes that it may help someone in the future diagnosed with this same condition. When I was first diagnosed there was a girl my age that was also a...
by Allyson Koorhan | Oct 29, 2020 | Awareness, ICD, Long QT Syndrome, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest
In October of last year, I had just arrived in Boise, ID. I work for an airline and was gearing up for two weeks of business travel, which would end off with my husband joining me in South Korea. Just a few hours into the trip, I wasn’t feeling well and someone who...
by Sue Morris | Oct 12, 2020 | Awareness, CPR, CPR and AED Awareness Week, Heart Hero, ICD, Long QT Syndrome, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest
Sue thanking her hero’s at McCall Fire and Police Department My husband and I were up at our cabin in McCall, ID on August 7, 2020. My husband, Steve, had just come inside after working in the yard and I was apparently making toast in the kitchen when I told...
by Heather Darling | Apr 20, 2020 | Genetic Testing, ICD, Long QT Syndrome, Parenting, SADS Spotlight
Heather and her son Carter Name: Heather Darling Age: 33 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? A little over 20 years ago How are you treated? Beta blockers and ICD How/when were you diagnosed? One morning in fifth grade my...
by Danielle Wright | Apr 20, 2020 | CPVT, ICD, Parenting, SADS Spotlight, Sudden Cardiac Arrest
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
by Kerri Dyer | Apr 20, 2020 | ARVC, ICD, Parenting, SADS Spotlight
Name: Kerri Dyer Age: 38 years Which SADS condition do you have? ARVC When were you diagnosed? 2014 How are you treated? (Beta blocker, ICD, etc.) 2 different beta blockers and ICD fitted How/when were you diagnosed? Collapsed at home with pulse of 276 bpm,...
