by Elizabeth Napolilli | Mar 12, 2020 | Awareness, Genetic Testing, ICD, Long QT Syndrome, SADS Spotlight
Elizabeth is studying to be a Physician Assistant (with a passion for cardiology!) Name: Elizabeth NapolilliAge: 30Which SADS condition do you have? Long QT Syndrome- Type 1When were you diagnosed? I began treatment in about 2000 with beta blockers but my diagnosis...
by Tisha | Jan 30, 2020 | Advocacy, Brugada Syndrome, Connecting with others, Heart Hero, ICD, Parenting, Rare Disease, SADS Spotlight, Sports/Exercise
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
by Jaclyn Kernion | Jan 13, 2020 | Advocacy, Awareness, ICD, Long QT Syndrome, SADS Spotlight, Support Groups
Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and...
by Sissy Sullins | Dec 2, 2019 | Awareness, Brugada Syndrome, ICD, Sudden Cardiac Arrest
Sissy Sullins living and thriving with Brugada My name is Sissy. I was diagnosed with Brugada Syndrome at age 39. I am now 60 years old. I will begin my story with my daddy. My daddy was very healthy all through his youth. All that anyone could ever remember...
by Dave Whelan | Oct 21, 2019 | Brugada Syndrome, CPR, ICD, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest
Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated? ICD and regular cardiology follow up Can you tell us about your SCA? My SCA occurred while working on a remote mine site in the...
by Heather Whitehurst | Oct 17, 2019 | Awareness, Conference, CPR, ICD, Long QT Syndrome, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest, Support Groups
Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD, paced to not go below 60bpm to help prevent arrhythmia as lower heart rates are a known trigger for me, avoiding meds...
