by Katie Cox | Mar 14, 2019 | Long QT Syndrome, SADS Spotlight
Carter (left), mom Katie, and John (right) Name: John and Carter Cox (Twins) Age: 3Which SADS condition do you have? Long QT type 2 When were you diagnosed? Birth How are you treated? Propranolol three times day. Potassium two times a day. AED with...
by Sheri | Mar 13, 2019 | Long QT Syndrome, Managing Multiple Diagnoses
We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures. We had no idea what the problem was. His brain scans were good. His pediatrician told me “oh, all 8 year olds faint now and then”,...
by Danielle Mundondo | Mar 8, 2019 | Long QT Syndrome, SADS Spotlight
Name: Danielle and Alanna Mundondo Age: 34 and 4 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? Age 19 via abnormal ECG and genetic testing for Danielle. At birth via cord blood genetic testing for Alanna. How are you...
by Waylon and Leila | Feb 21, 2019 | Long QT Syndrome, SADS Spotlight
Name: WaylonAge: 10 monthsWhich SADS condition do you have? Long QT Type 1 When were you diagnosed? 4 months old How are you treated? Beta blocker How/when were you diagnosed? When I was born, they found an unusual arrhythmia on my EKG after they noticed it when...
by Tasha Kempton | Feb 19, 2019 | Long QT Syndrome, SADS Spotlight
Name: Tasha Kempton Age: 43 Which SADS condition do you have? LQT2 When were you diagnosed? 1992 How are you treated? Beta Blocker & ICD How/when were you diagnosed?I was diagnosed with Long QT in 1992. My cousin Josh Sergio, passed away in his sleep on October...
by Dawn Barnett | Feb 15, 2019 | Long QT Syndrome, SADS Spotlight
Name: Dawn BarnettAge: 71Which SADS condition do you have? Long Qt Syndrome 11When were you diagnosed? 2005How are you treated? beta blocker, ICD How/when were you diagnosed? 2005 after heart arrest and medically-induced coma for 7 days. Identical twin...
