by Bridget McGaughey | Sep 17, 2018 | Brugada Syndrome, ICD, Long QT Syndrome, Support Groups
Bridget McGaughey, 37, has Long QT Syndrome and Brugada Syndrome. She was diagnosed in 2012 at age 32. Her treatment is an ICD. How/when were you diagnosed? I was diagnosed after a syncope episode in 2012. I did a face plant (ouch) in a parking garage after walking...
by Kellie Moore | Sep 1, 2018 | Long QT Syndrome
On the way to high school graduation rehearsal, a classmate made an unusual confession. “I’ve never told you this,” he said. “But I’m really sorry about your heart.” Rather than feeling touched by his words, I felt a little insulted. As an optimistic 18-year-old, I...
by Kellie Moore | Aug 5, 2018 | Long QT Syndrome, Parenting
When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own well-being, it’s not healthy for...
by Shannon Cron | Jun 29, 2018 | Long QT Syndrome
Shannon Cron, 38, has Long QT Syndrome Type 2. She was diagnosed in 2017. She is treated with a beta blocker. How/when were you diagnosed? I was diagnosed after the death of my 14 year old daughter in August 2016 who was the first in the family to be...
by Rachelle | Jun 15, 2018 | Connecting with others, CPVT, HCM, ICD, Long QT Syndrome, Research, Sports/Exercise, Sudden Cardiac Arrest, Timothy Syndrome, Uncategorized
Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay,...
by Kristie Lindblom | Jun 13, 2018 | ICD, Long QT Syndrome
Kristie Lindblom, 38, has Long QT Syndrome Type 2. She was diagnosed in 1999 at 19 years old. Her treatment includes a beta blocker, spironolactone, and an ICD. How/when were you diagnosed? I was diagnosed during my freshman year of college. I had been passing out...
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Angela Watschke
Angela Smilovici
Bridget McGaughey
Deb Thibodeau
Doug Rachac
Erin McGuire Clark
Jasmine Wylie
Jennifer White
Jett Hanna
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Kathryn Young
Kellie Moore
Kristie Lindblom
Meghan Mannello
Melissa Russom
Rachelle
Roger Clifford
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Sara Meslow
Shannon Cron
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