by Jessica Robinson | Jul 17, 2020 | Advocacy, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise
My name is Jessica, I am 22 years old and I have LQTS. Throughout my childhood and adolescence, I was involved in many activities, including cheerleading, softball, and my high school’s marching band. While these activities were fun, they caused me to suffer from...
by Ayden | Jul 10, 2020 | Awareness, CPR, Long QT Syndrome, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to the ER to get IV fluids. The doctor did an ECG to see if she could give me some medicine to stop puking and noticed an...
by Alice Lara | Jun 5, 2020 | AEDs, CPR, CPR and AED Awareness Week, Long QT Syndrome, Uncategorized
Aurora went into tachycardia in February 2019, shortly after turning 2. She has Long QT Syndrome and she had RSV and rhinovirus. It was 3AM and my husband and I used our AED and CPR to save her life before paramedics arrived. She is now...
by Susana Rodriguez | Jun 1, 2020 | AEDs, Awareness, CPR, CPR and AED Awareness Week, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Susana participates in triathlons as well as the Paralympics. Name: Susana Rodríguez Age: 32 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers + always carry my AED to training. How were you diagnosed? When I was 28 I started...
by Sophie Thatcher | May 21, 2020 | Awareness, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Sophie Thatcher Age: 19 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers How were you diagnosed? In 2018, as a junior in high school, I decided to try out for my school’s water polo team as a completely new sport. On the last...
by Nora Lambert | Apr 24, 2020 | COVID19, Long QT Syndrome
Nora Lambert, 87 years old! As told by Nora: Here in New Orleans where the virus is rampant, a doctor (Cory Herbert) reviews things each day on one of our top TV channels. For the first time ever, I heard a reference to Long QT Syndrome. He said it so fast with regard...
