by Alexis Holmgren | Oct 9, 2018 | Announcements, ICD, Long QT Syndrome
When we heard the 2017 SADS Conference was going to be held in Canada, it seemed like a sign for my mom and me as Canadians. In the past, we had not been able to get insurance to travel outside of the country after her sudden cardiac arrest 5 years prior. Since it was...
by Bridget McGaughey | Sep 17, 2018 | Brugada Syndrome, ICD, Long QT Syndrome, Support Groups
Bridget McGaughey, 37, has Long QT Syndrome and Brugada Syndrome. She was diagnosed in 2012 at age 32. Her treatment is an ICD. How/when were you diagnosed? I was diagnosed after a syncope episode in 2012. I did a face plant (ouch) in a parking garage after walking...
by Kellie Moore | Sep 1, 2018 | Long QT Syndrome
On the way to high school graduation rehearsal, a classmate made an unusual confession. “I’ve never told you this,” he said. “But I’m really sorry about your heart.” Rather than feeling touched by his words, I felt a little insulted. As an optimistic 18-year-old, I...
by Kellie Moore | Aug 5, 2018 | Long QT Syndrome, Parenting
When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own well-being, it’s not healthy for...
by Shannon Cron | Jun 29, 2018 | Long QT Syndrome
Shannon Cron, 38, has Long QT Syndrome Type 2. She was diagnosed in 2017. She is treated with a beta blocker. How/when were you diagnosed? I was diagnosed after the death of my 14 year old daughter in August 2016 who was the first in the family to be...
by Rachelle | Jun 15, 2018 | Connecting with others, CPVT, HCM, ICD, Long QT Syndrome, Research, Sports/Exercise, Sudden Cardiac Arrest, Timothy Syndrome, Uncategorized
Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay,...
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Alexis Holmgren
Angela Watschke
Angela Smilovici
Bridget McGaughey
Deb ThibodeauDoug Rachac
Erin McGuire Clark
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Jennifer WhiteJett Hanna
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Kellie Moore
Kristie Lindblom
Meghan Mannello
Melissa Russom
Rachelle
Roger Clifford
SADS ChannelSara Meslow
Shannon Cron
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