by Alan London | Jan 11, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight
In 1997, my wife and I had three kids. Our son Michael, who was eleven, had fainted twice. The first time, it was explained away by the E.R. and his pediatrician as a vasovagal episode from unusual activities. The second time, he got an EKG and was examined by a...
by Kathi Blum | Jan 4, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight
In 1999, we got a phone call on a Friday from our son who lived on a college campus where his sister also went to school. We were on vacation. He said that his sister had passed away – he wanted to tell us before the police called us. Nobody knew why she had passed...
by April McCloud | Dec 14, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT when I was eight years old, and was able to get genetic testing as an adult to identify that I have multiple LQTS Type 2 mutations. As a child in the ‘90s, the doctors knew very little...
by Mandi Chesser | Sep 13, 2021 | Advocacy, Awareness, Long QT Syndrome, Parenting, Schools
Can you tell me a little bit about your family’s SADS journey? In utero, our doctors thought that my daughter Madison had heart block, and I was sent to a specialist. They confirmed that it was not a heart block – she just had a low heart rate. When Madison was...
by Katie Wildhagen | Sep 10, 2021 | Awareness, ICD, Long QT Syndrome, Sports/Exercise
Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...
by Mona Allan | Aug 31, 2021 | Awareness, Long QT Syndrome, Managing Multiple Diagnoses
Mona as a firefighter/ paramedic in 1999Mona running the Phoenix Rock-N-Roll Marathon in 2005Mona post double mastectomy surgery In 2003 I was a very physically fit female Firefighter/Paramedic who was running full Marathons. I was 35 years old, a 14-year veteran of...
