by Lauren Hannah | Jan 9, 2019 | Long QT Syndrome, SADS Spotlight
Lauren and Avery Hannah Ages: 38 and 7 Condition: Long QT Syndrome Type 1, I was diagnosed at 13, Avery was diagnosed at birth. Treatment: We are both treated with Nadolol. I was diagnosed by EKG after my brother had a fainting episode while playing basketball. I...
by Shawna Montoya | Dec 20, 2018 | Camp, Connecting with others, CPVT, ICD, Long QT Syndrome
Back in 2016, I came across this special camp for kids with heart disease called Camp Taylor in Modesto, California. You see, I was in the midst of trying to digest the fact that my daughter had this thing called Long QT Syndrome and CPVT (yep—both) and that she had...
by Samantha George | Dec 17, 2018 | ICD, Long QT Syndrome
I have a life threatening heart condition called Long QT Syndrome (LQTS). I have an implantable cardioverter-defibrillator (ICD), a small electronic device implanted in my chest, under the muscle just below the collarbone. Its main function is to prevent sudden death...
by Mary Hickey | Dec 4, 2018 | Conference, Long QT Syndrome, SADS Spotlight
Mama’s house is gone Fragments remain as part of That once vital family I am one of those fragments My name is Mary I have a story to tell Dirt road, uninsulated house, outhouse, wood stoves- one for heating, the other for cooking, water from a pump nearby. The...
by Alexis Holmgren | Oct 9, 2018 | Announcements, ICD, Long QT Syndrome
When we heard the 2017 SADS Conference was going to be held in Canada, it seemed like a sign for my mom and me as Canadians. In the past, we had not been able to get insurance to travel outside of the country after her sudden cardiac arrest 5 years prior. Since it was...
by Bridget McGaughey | Sep 17, 2018 | Brugada Syndrome, ICD, Long QT Syndrome, Support Groups
Bridget McGaughey, 37, has Long QT Syndrome and Brugada Syndrome. She was diagnosed in 2012 at age 32. Her treatment is an ICD. How/when were you diagnosed? I was diagnosed after a syncope episode in 2012. I did a face plant (ouch) in a parking garage after walking...
