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Holding My Breath

She appears “normal” and healthy on the outside. She does everything your 4 year old does. She laughs the same. She throws a temper tantrum the same. She thinks potty humor is the funniest thing ever just the same. She comes into your room 20 times every night before...

SADS Spotlight: Jaren

Name: Jaren BergAge: 10Which SADS condition do you have? LQTS Type 1 When were you diagnosed? November 2017 at age 9 How are you treated? Nadolol 40mg, Left Cardiac Sympathetic Denervation, ICD How/when were you diagnosed?We went to Mayo in November 2017 for a second...

SADS Spotlight: John and Carter

Carter (left), mom Katie, and John (right) Name: John and Carter Cox (Twins) Age: 3Which SADS condition do you have? Long QT type 2 When were you diagnosed? Birth How are you treated? Propranolol three times day.  Potassium two times a day.  AED with...

Our LQTS Story

We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures.  We had no idea what the problem was.  His brain scans were good.  His pediatrician told me “oh, all 8 year olds faint now and then”,...