by Elizabeth Napolilli | Mar 12, 2020 | Awareness, Genetic Testing, ICD, Long QT Syndrome, SADS Spotlight
Elizabeth is studying to be a Physician Assistant (with a passion for cardiology!) Name: Elizabeth NapolilliAge: 30Which SADS condition do you have? Long QT Syndrome- Type 1When were you diagnosed? I began treatment in about 2000 with beta blockers but my diagnosis...
by Jaclyn Kernion | Jan 13, 2020 | Advocacy, Awareness, ICD, Long QT Syndrome, SADS Spotlight, Support Groups
Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and...
by Kiara Landin | Oct 24, 2019 | Advocacy, AEDs, CPR, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the importance and necessity of bystander CPR along with the use of an AED. In 2007 I was 16 years old, running the mile at...
by Heather Whitehurst | Oct 17, 2019 | Awareness, Conference, CPR, ICD, Long QT Syndrome, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest, Support Groups
Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD, paced to not go below 60bpm to help prevent arrhythmia as lower heart rates are a known trigger for me, avoiding meds...
by Lisa Paglia | Sep 30, 2019 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Lisa Paglia Age: 52Which SADS condition do you have? LQT2 When were you diagnosed? 2 years After SCA in 1985 How are you treated? ICD How/when were you diagnosed? I had SCA at 17. Treated incorrectly for years, then appropriately got ICD. I learned my dad,...
by Beth Roy | Sep 20, 2019 | Awareness, Long QT Syndrome, SADS Spotlight
Name: Beth RoyAge: 58What SADS Condition do you have? LQT1 When were you diagnosed? 2016 How are you treated? Nadolol (beta blocker) How were you diagnosed?I was diagnosed with AFIB and prescribed amiodarone. While gardening, attending a picnic or just brushing my...
