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SADS Spotlight: John and Carter

Carter (left), mom Katie, and John (right) Name: John and Carter Cox (Twins) Age: 3Which SADS condition do you have? Long QT type 2 When were you diagnosed? Birth How are you treated? Propranolol three times day.  Potassium two times a day.  AED with...

Our LQTS Story

We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures.  We had no idea what the problem was.  His brain scans were good.  His pediatrician told me “oh, all 8 year olds faint now and then”,...

SADS Spotlight: Waylon

Name: WaylonAge: 10 monthsWhich SADS condition do you have? Long QT Type 1 When were you diagnosed? 4 months old How are you treated? Beta blocker How/when were you diagnosed? When I was born, they found an unusual arrhythmia on my EKG after they noticed it when...

SADS Spotlight: Tasha

Name: Tasha Kempton Age: 43 Which SADS condition do you have? LQT2 When were you diagnosed? 1992 How are you treated? Beta Blocker & ICD How/when were you diagnosed?I was diagnosed with Long QT in 1992. My cousin Josh Sergio, passed away in his sleep on October...

SADS Spotlight: Dawn

Name:  Dawn BarnettAge: 71Which SADS condition do you have? Long Qt Syndrome 11When were you diagnosed? 2005How are you treated? beta blocker, ICD How/when were you diagnosed? 2005 after heart arrest and medically-induced coma for 7 days.  Identical twin...