by Michaela Hetzler | Jun 9, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sports/Exercise
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I defined myself – I loved sports. I was in a track and field hurdle event, got dizzy at the finish line, and almost passed...
by Becky Knowles | May 19, 2021 | Awareness, Fundraising, Long QT Syndrome
Can you tell me a little bit about your family’s SADS journey? Our son was seven years old when he cardiac arrested. We went to go wake him up for school and we found him dead in bed, and we did CPR. He was in a coma, and had hypothermia therapy, and then recovered....
by Brooke | Apr 12, 2021 | Advocacy, ICD, Long QT Syndrome, Sports/Exercise
Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy and healthy kid who didn’t complain much, so my mom immediately took me to a cardiologist when I first mentioned this. A...
by Genevie Echols | Mar 17, 2021 | Awareness, Connecting with others, ICD, Long QT Syndrome, Managing Multiple Diagnoses
This is a photo of my girls and I when I was asked to speak at a fundraiser for a gala. I spoke on some of my patient experience. The money raised went to help build a hybrid cath lab to perform lead extractions safely. What SADS condition do you have, and when...
by Kellie Moore | Mar 1, 2021 | Awareness, Connecting with others, Long QT Syndrome, Parenting
Name: Kellie Moore SADS Condition: LQTS Type 2 Tell me a little bit about your journey with pregnancy and SADS. My daughter, Sophia, will be four in April. She was born in 2017. I really didn’t have any huge concerns going in. It was just very exciting. But of...
by Cynthia | Feb 25, 2021 | Awareness, Connecting with others, Long QT Syndrome, SADS Spotlight
Name: Cynthia Age: 58 years old Which SADS condition do you have? Type 1 LQT When were you diagnosed? Since 2008, over 10 years How are you treated? Toprol How/ when were you diagnosed? My diagnosis began through a routine primary care visit that discovered it through...
