by Tania Cselka | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you diagnosed? It all started when my husband woke during the night & found me not breathing. He resuscitated me, called an...
by Cicely Enriquez | Apr 20, 2020 | Awareness, Long QT Syndrome, Parenting, Sports/Exercise
Joey at golf camp through Children’s Heart Association in Cincinnati. When my son, Joey, was six years old, he was diagnosed with Long QT Syndrome Type 2. The day he was diagnosed was the hardest day of my life but I want to tell our story in the hopes that my...
by Kristin Ristine | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, Parenting, SADS Spotlight
Kristin’s daughter the day she wore her first holter monitor. Name: Kristin Ristine Age: 34 Which SADS condition do you have? Long QT Syndrome Type 1 How are you treated? On beta blockers How/when were you diagnosed? My mom was diagnosed while at the hospital...
by Natalie Johnson | Apr 7, 2020 | ICD, Long QT Syndrome, Parenting, SADS Spotlight
Natalie in Maui on a snorkeling tour! Name: Natalie J Age: 27 Which SADS condition do you have? Long QT When were you diagnosed? August 2010 How are you treated? (Beta blocker, ICD, etc.) Beta blocker and ICD How/when were you diagnosed? I was diagnosed at 17...
by Elizabeth Napolilli | Mar 12, 2020 | Awareness, Genetic Testing, ICD, Long QT Syndrome, SADS Spotlight
Elizabeth is studying to be a Physician Assistant (with a passion for cardiology!) Name: Elizabeth NapolilliAge: 30Which SADS condition do you have? Long QT Syndrome- Type 1When were you diagnosed? I began treatment in about 2000 with beta blockers but my diagnosis...
by Jaclyn Kernion | Jan 13, 2020 | Advocacy, Awareness, ICD, Long QT Syndrome, SADS Spotlight, Support Groups
Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and...
