by Erin McGuire Clark | Aug 27, 2018 | Parenting, Schools
Being “sidelined” from chronic medical condition symptoms can be both overwhelming and depressing. Though the comfort zone of home will inevitably lure us from school toward the “path of least resistance” on those rough days, unfortunately, the more you miss school,...
by Kellie Moore | Aug 5, 2018 | Long QT Syndrome, Parenting
When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own well-being, it’s not healthy for...
by Kellie Moore | Apr 13, 2018 | Advocacy, Fundraising, Long QT Syndrome, Parenting, Timothy Syndrome
Fundraisers don’t have to be big or expensive to make a difference—they can be as simple as having people over for milk and cookies. That’s something Mary Ann Ciciarelli knows to be true. For the past seven years, her family has hosted a milk-and-cookies fundraiser in...
by Deb Thibodeau | Feb 14, 2018 | Advocacy, HCM, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
My heart breaks every time that I hear of a child dying suddenly from an undetected heart condition. How does one recover from knowing that if a diagnosis was made, their child may be with them today? I don’t have that answer, but unbelievably found myself...
by Kathryn Young | Feb 10, 2018 | Long QT Syndrome, Parenting
Note from SADS Channel: we recently posed the question of ‘how does your family handle deciding if meds are ok to take?’ to several LQTS families. Their answers can be found here. This is Kat’s answer, which we thought needed to be its own post!...
by Erin McGuire Clark | Jan 23, 2018 | ICD, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
WHEN PIGS FLY As the loud telephone ring startles me from my sleep, I inexplicably collapse to the floor and am rushed to the hospital where my heart monitor repeatedly goes crazy with bouts of cardiac arrest as I am inappropriately treated for a gamut of suspected...
