by Rachelle | Jun 15, 2018 | Connecting with others, CPVT, HCM, ICD, Long QT Syndrome, Research, Sports/Exercise, Sudden Cardiac Arrest, Timothy Syndrome, Uncategorized
Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay,...
by Deb Thibodeau | Feb 14, 2018 | Advocacy, HCM, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
My heart breaks every time that I hear of a child dying suddenly from an undetected heart condition. How does one recover from knowing that if a diagnosis was made, their child may be with them today? I don’t have that answer, but unbelievably found myself...
by Erin McGuire Clark | Jan 23, 2018 | ICD, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
WHEN PIGS FLY As the loud telephone ring startles me from my sleep, I inexplicably collapse to the floor and am rushed to the hospital where my heart monitor repeatedly goes crazy with bouts of cardiac arrest as I am inappropriately treated for a gamut of suspected...
by Jasmine Wylie | Aug 29, 2017 | Connecting with others, Long QT Syndrome, Sudden Cardiac Arrest
Twinkle, twinkle little bat…… When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in particular- “How to live to be 102 with Long QT”- made an impact on me and my family. Reading a story of...
by Angela Watschke | Jul 31, 2017 | Fundraising, ICD, Long QT Syndrome, Sudden Cardiac Arrest
On the morning of June 7th, 2014, our just turned 2-year-old daughter suffered a sudden cardiac arrest in our home. This came as a complete shock to us, as it occurred with no warning whatsoever. Once stabilized in the ambulance in our driveway, she was transported to...
by Jasmine Wylie | Jun 28, 2017 | Fundraising, Long QT Syndrome, Sudden Cardiac Arrest
This is Abrielle Watschke. In 2014, she survived an out of hospital sudden cardiac arrest. Today, she is thriving with Long QT Syndrome. Read the Watschke family’s story here. Donate to the 2017 No Ball at All Campaign in honor of this amazing...
