by Leslie Needham | Apr 23, 2020 | Advocacy, CPVT, Parenting, Sudden Cardiac Arrest
Lily and her sister Charlotte My daughter has CPVT. My daughter, Lily, suffered sudden cardiac arrest while swimming in our pool on July 8, 2012. She went without oxygen for an estimated 11 minutes. Lily continues her recovery from the resulting anoxic brain...
by Tania Cselka | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you diagnosed? It all started when my husband woke during the night & found me not breathing. He resuscitated me, called an...
by Karin Blåder | Apr 20, 2020 | CPVT, SADS Spotlight, Sports/Exercise, Sudden Cardiac Arrest
Name: Karin Blåder, from Sweden Age: 33 Which SADS condition do you have? CPVT How are you treated? (Beta blocker, ICD, etc.) Beta blocker (Inderal) and “Tambocor” How/when were you diagnosed? I was diagnosed in the summer of 2019. I passed out at the gym...
by Danielle Wright | Apr 20, 2020 | CPVT, ICD, Parenting, SADS Spotlight, Sudden Cardiac Arrest
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
by Cathy Overs | Apr 20, 2020 | Awareness, Brugada Syndrome, Genetic Testing, Schools, Sudden Cardiac Arrest, Uncategorized
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he fainted. We couldn’t tell if the kids were making it up & playing a joke on dad while I was at work. The next...
by Sissy Sullins | Dec 2, 2019 | Awareness, Brugada Syndrome, ICD, Sudden Cardiac Arrest
Sissy Sullins living and thriving with Brugada My name is Sissy. I was diagnosed with Brugada Syndrome at age 39. I am now 60 years old. I will begin my story with my daddy. My daddy was very healthy all through his youth. All that anyone could ever remember...
