SADS Foundation Blog

A Walker, Not A Runner

by Roger Clifford | Sep 1, 2018 | ARVC, Sports/Exercise

Some positives & observations of now being a walker & not a runner: 1. When it’s 4:30 in the morning I don’t even know cause I’m still sleeping; 2. I don’t have to experience being 20 miles into a marathon feeling like hell & say, shoot, I still got...

5 Things I’ve Gained From Having A Heart Condition

by Kellie Moore | Sep 1, 2018 | Long QT Syndrome

On the way to high school graduation rehearsal, a classmate made an unusual confession. “I’ve never told you this,” he said. “But I’m really sorry about your heart.” Rather than feeling touched by his words, I felt a little insulted. As an optimistic 18-year-old, I...

TAKE YOUR LIFE BACK!: Chronic Medical Conditions and School

by Erin McGuire Clark | Aug 27, 2018 | Parenting, Schools

Being “sidelined” from chronic medical condition symptoms can be both overwhelming and depressing. Though the comfort zone of home will inevitably lure us from school toward the “path of least resistance” on those rough days, unfortunately, the more you miss school,...

Postpartum Self-Care Tips For Women With LQTS

by Kellie Moore | Aug 5, 2018 | Long QT Syndrome, Parenting

When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own well-being, it’s not healthy for...

Magnets and Airports: Should ICD Patients Be Afraid?

by Doug Rachac | Jul 8, 2018 | ICD, Pacemaker

Editor's Note: This post is also on HCM Beat, a great resource for topics related to Hypertrophic Cardiomyopathy. When cardiac patients receive a pacemaker or defibrillator, they often have questions about their new “friend.” They wonder if this new device has...

Ten Signs You Might be Getting Over Your Cardiac Arrest

by Ted Guloien | Jun 30, 2018 | Sudden Cardiac Arrest

So, you’ve had a sudden cardiac arrest. For you and many of us, this marks the beginning of long-term medical interventions and therapies designed to diagnose and treat the underlying cause or causes of this traumatic heart-stopping event. But while the family...