SADS at Home: Andy Golden
Andy celebrated his birthday on March 22! I turned 60 on March 22nd. The big party my wife planned was cancelled. I spent my birthday totally alone because my wife is working in California for Roche Diagnostics; her company made one of the tests that they are using to...
read moreLily’s Story of CPVT
Lily and her sister Charlotte My daughter has CPVT. My daughter, Lily, suffered sudden cardiac arrest while swimming in our pool on July 8, 2012. She went without oxygen for an estimated 11 minutes. Lily continues her recovery from the resulting anoxic brain...
read moreSADS Spotlight: Justin
Name: Justin Price Age: 4 years old Which SADS condition do you have? Brugada Syndrome When were you diagnosed? He was diagnosed one week after his first birthday (April 2016) after going into cardiac arrest at home. How are you treated? He was treated with an ICD,...
read moreSADS Spotlight: Rebecca
Name: Rebecca Schmidling Age: 40 Which SADS condition do you have? ARVC When were you diagnosed? 2012 at age 32. How are you treated? (Beta blocker, ICD, etc.) ablation in 2014, sotalol and an ICD How/when were you diagnosed? I was 32 years old and about 6 weeks...
read moreMason and Steve: Life with Long QT Syndrome
Steve and his son Mason from a night in the hospital Hello. My name is Mason Inman. I am 12. On March 18th, 2019 while attending school, I collapsed walking the track. I came through they tell me after about 3 minutes. I was taken to hospital by ambulance with my...
read moreSADS Spotlight: Heather Darling
Heather and her son Carter Name: Heather Darling Age: 33 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? A little over 20 years ago How are you treated? Beta blockers and ICD How/when were you diagnosed? One morning in fifth grade my...
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