Welcome to Atlanta!
Welcome to Atlanta! Our family is thrilled that Atlanta is hosting this year’s SADS Foundation Conference. There are so many delicious new restaurants, landmarks and fun attractions for the whole family to enjoy. You can do as much, or as little as you’d like in our...
read moreSADS Spotlight: Richard Lamphier, RN
Name: Richard LamphierLocation: Atlanta, GA Occupation: Program Manager Project S.A.V.E of Children's Healthcare of Atlanta, an affiliate of Project ADAM Why were you drawn to nursing as a career? I had a good friend who passed away. While he was in...
read moreSADS Spotlight: Olivia
Name: Olivia KenworthyAge: 12Which SADS condition do you have? Long QT Syndrome When were you diagnosed? 2 yrs oldHow are you treated? Beta Blocker How/when were you diagnosed?An aunt "passed out" at work doing jumping jacks. She was diagnosed...
read moreA Home Away From Home, A World Away
Since receiving my diagnosis of LQTS Type 5 at the age of 12, I had always wanted to go to a heart camp. The children’s hospital where I received care in Alberta, Canada had posters for a heart camp in California on the wall but when I asked my doctor about anything...
read moreSADS Spotlight: Aurora
Name: Aurora Age: 2Which SADS condition do you have? Timothy SyndromeWhen were you diagnosed? 10 months for LQTS & 1 year for Timothy Syndrome How are you treated? Beta blocker (propranolol), ICD (implanted February 19, 2019) How/when were you diagnosed?...
read moreSADS Spotlight: CJ
Name: CJ HeilAge: 20Which SADS condition do you have? Long QT SyndromeWhen were you diagnosed? Oct. 2010How are you treated? Beta Blocker (Nadolol) What has been the biggest challenge you’ve faced in living with your diagnosis? Knowing that even though it’s not...
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