SADS Foundation Blog

An Altered Path

by Holly Mulder | Nov 5, 2019 | CPVT, LCSD, Managing Multiple Diagnoses, Sports/Exercise

Hi! My name is Holly Mulder. I am 29 years old and I have CPVT. I live in Charlotte, NC with my husband and English Bulldog, Oliver. Oliver When I was 22, I started training for my first triathlon. A few years later, I had completed over 20 short...

SADS Spotlight: Cole

by Cole Inman | Oct 29, 2019 | Awareness, CPVT, SADS Spotlight, Sudden Cardiac Arrest

Name: Christian "Cole" InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol x2 daily, flecainide x2 daily Can you tell us about your SCA? 1st time I was on a fair ride called the zipper. No...

SADS Spotlight: Kiara

by Kiara Landin | Oct 24, 2019 | Advocacy, AEDs, CPR, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest

I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the importance and necessity of bystander CPR along with the use of an AED. In 2007 I was 16 years old, running the mile at...

SADS Spotlight: Nicholas

by Nicholas Arruda | Oct 23, 2019 | Awareness, Conference, CPR, CPVT, LCSD, SADS Spotlight

Hi! My name is Nicholas Arruda. I am 15 years old and I am from Johnston, Rhode Island. I live with my dad, Raymond and my mom, Julie. I have a 13 year old sister named Emily and a one year old Yorkshire Terrier named Chloe. I have CPVT (Catecholaminergic Polymorphic...

SADS Spotlight: Dave

by Dave Whelan | Oct 21, 2019 | Brugada Syndrome, CPR, ICD, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest

Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated? ICD and regular cardiology follow up Can you tell us about your SCA? My SCA occurred while working on a remote mine site in the...

SADS Spotlight: Heather

by Heather Whitehurst | Oct 17, 2019 | Awareness, Conference, CPR, ICD, Long QT Syndrome, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest, Support Groups

Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD, paced to not go below 60bpm to help prevent arrhythmia as lower heart rates are a known trigger for me, avoiding meds...