Healing Wall - in honor of

I really wanted to tell my son's story.. A prefectly healthy, happy 14 year old.. Until the fainting started. ... see more

Living with Long QT. I was diagnosed with Long QT Syndrome, during February 2008, when I was 15. ... see more

On 9-10-11, I gave birth to a beautiful 5lb 12oz baby girl. I chose the name Katie for her. When Katie was 6 weeks old I took her to the local hospital for a little trouble breathing. She stayed the night there for observation. After a quite night, the doctor came in and said he thought she was fine but was going to send her to Lubbock 'just in case'. I was quite confused by this but agreed. Katie slept through the 1 1/2 hour ambulance ride. Once we arrived, we were taken to the children's floor... see more

My name is Andy. I am 51 years old and have been living with ICDs since 1998 and am currently on #4 (the last three have each lasted 4 years). I have a long history of heart issues. I was born with Tetralogy of Fallot, a common congenital heart defect, had it corrected in 1965, and had a pretty normal childhood. I ended up with another repair in 1975. High school, college, and grad school went smoothly until I developed Atrial Fibrillation (A Fib) in the late 1980s. A Fib is a pretty harml... see more

Audrey Claire Koch is our precious, smiling daughter, and we are amazingly blessed to have her alive with us today! This is her story – up until today, when she is 19 months old, living and thriving with Long QT Syndrome! In April of 2010, we were excitedly 20 months pregnant, with our third child. At 39 years old, I was used to the doctor appointment schedule including the routine Perinatal visit, in addition to all the regular OB appointments. At the 20 week Perinatal appointment, our li... see more

Our 11 year old son Benjamin was born with the heart defect Transposition of the great arteries, and had open heart surgery at 5 days old. We were told that he could never play contact sports but could lead a normal life otherwise. He had been followed closely by cardiologists. Benjamin had been doing great. He started 6th grade and was loving school. We had signed our 4 children up for swim lesson like we often in the fall. This is when Benjamin experienced sudden death syndrome.... see more

Brayden is a loveable boy who was born with a heart condition called Long QT 1. We talk to Brayden openly about what he has and what he is limited in doing. In Brayden’s world he knows he has a heart condition that he takes medication for two times a day. He is aware that he can’t play any competitive sports. ... see more

On the 29th of June 2011, I suddenly became aware that my heart wasn’t beating. Then I woke up. My first thought was “S--t, I’ve had a stroke,” and I went and looked in the mirror to see if my face had dropped. It hadn’t, so I was totally relieved that I hadn’t had a stroke. I then thought that maybe I should just check that I was OK, and rang my after-hours doctor. They sent an ambulance, which came quickly. ... see more

My name is Cheyenne, I'm 14 years old, and I was a competitive swimmer when the episodes had gotten very severe and repetitive. I have fainting spells, dizziness, and I have severe chest pain. My first doctor said it was simply just common fainting (vasal vagal syncope) and that simply taking some vitamins would make the episodes stop.... well they didn’t so we finally went for my second opinion. I had a stress test done and I completely passed out. All they had to say was "oh you were telling t... see more

Halloween 2011 is a day I will never forget. Go back to 12/2010 when my niece had been diagnosed with LQTS -1. Six months later my nephew. I remember thinking just how lucky we were as a family to have found out about this. But yet scared at the same time. In the middle of all of this I can’t stop thinking of my own two girls. Knowing that this is genetic my next step was to get them tested. ... see more

To understand why we chose ICD placement I have to take you back several years to the very beginning of ChloeJace's story. I must let you know that there may be some parts of the story that you may not like, however it is her story. Back in 2003 ChloeJace go sick, we could not figure out what was going on with. At age 3 she had already ben diagnosed with asthma, allergies, reflux, had tubes put in her ears, and had RSV. ChloeJace's would wake up in the mornings throwing up, afterward she woul... see more

Chris was born on August 1, 1987. He was born exactly on his due date and was perfectly healthy. He continued to enjoy good health until September 6, 2008. Up until that day, the only complications he suffered were occasional asthma attacks triggered by upper respiratory infections – which he outgrew by the age of 7. He excelled in school, sports, and enjoyed a Southern California life, having fun with his many friends and family.... see more