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Heidi Owen
SADS Foundation:Sudden Arrhythmia Death Syndromes Foundation
Fund in Memory of
Heidi Owen
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Heidi Owen was a three-sport high school athlete and went on to compete for the University of Minnesota Track and Field Team. However, it was during her college years that she suffered a cardiac arrest and was diagnosed with Long QT Syndrome. Determined not to let life slow her down, Owen received an ICD in 2004, and has since run two marathons and two half marathons (as well as has married and has had two children).
Due, in part, to her own medical history, Owen went on to become a cardiac nurse to help others in her own situation. In fact, she recently started a new job as the Long QT Syndrome RN Coordinator at Mayo’s Long QT Clinic.
Heidi’s advice: “Long QT Syndrome is definitely life changing but you should just focus on finding your new normal. You don’t have to live your life in fear. Educate yourself about the disease because knowledge is power. Finding a health care provider that is very familiar and well educated on Long QT is vital, as well. They can help you make treatment decisions that are best for your specific condition, whether that be medication, surgery, or an implantable defibrillator.”
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Warning Signs
Family history of unexpected, unexplained sudden death under age 40.
Fainting or seizure during exercise, excitement or startle.
Consistent or unusual chest pain &/or shortness of breath during exercise.