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SADS
Action Alert: Congressional Budget Appropriations
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| Dear Michelle,
The House of Representatives is now working on their
version of the budget for the fiscal year 2010, and
Representatives can submit specific appropriations requests
for federal programs and projects. Program level requests are
due to the House Committee on Appropriations TODAY. We must
take action to ensure that our federal health agencies,
including NIH, CDC, and HRSA, obtain increased, sustainable
funding to continue to improve and transform our health
systems. | |
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| What You Can Do...
Contact your Representative TODAY,
either by fax or email, to ask for their support
in increasing the FY10 budget for federal health
programs.
To find your Representative's contact
information, simply visit www.house.gov and
insert your zip code into the upper left hand
corner. Then click on your Representative's name.
Look for the contact information for the DC office
to find the fax number, email address, or
instructions for completing a web form.
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| Writing to your
Representative...
If Congress provides increased, sustainable
funding for our federal health programs, we can
create better systems to benefit all. As SADS
families, you know the impact that awareness and
prevention programs have played in your life and
how vital they are to saving young lives.
The following can be used for an email or
voicemail, and can be adapted if a staff member
from your Representative's office is available to
speak with you:
Dear Representative
(insert name),
As your constituent, I am
writing to inform you of important priorities
identified by the health community. Please
consider the following as you make your program
level requests to the Appropriations Committee,
Subcommittee on Labor, HHS, Education and Related
Agencies for the fiscal year 2010 budget:
Strategic, Long-term Translational
Research Plan - We urge you to submit a
program level request for a 10% increase in
funding for the National Institutes of Health
(NIH), with $100 million of the NIH budget
allocated to the Rare and Neglected Disease
Initiative (RNDI). RNDI received start up funding
in FY09, but requires a strong and sustained
increase to continue work that will ultimately
benefit millions of patients with rare and
neglected diseases who are waiting for treatments
and cures. In addition, we would like to see the
Centers for Disease Control and Prevention (CDC)
budget increased to $8.6 billion for FY2010.
Services - As research discoveries
are translated into services, we will need
increased resources for service-related agencies.
The Health Resources and Services Administration
(HRSA) must receive an adequate funding increase
to deliver the benefits of translation to those in
need. We need research to improve quality, safety,
efficiency, and effectiveness of healthcare as we
move into health reform; therefore the Agency for
Healthcare Research and Quality (AHRQ) must
receive sufficient funding to carry out this
important work, including comparative
effectiveness research.
Regulatory
Oversight - We must upgrade the regulatory
capacity for supporting innovation and safety, and
increase flexibility to allow for responsiveness
to new methods in development of diagnostics and
therapies. Appropriations must provide adequate
funding for the Food and Drug Administration (FDA)
and the Centers for Medicare and Medicaid Services
(CMS) to coordinate oversight and regulation of
genetic and genomic tests as the cornerstone of
personalized medicine. We must minimize
duplication of efforts and conflicts in regulation
between FDA and CMS. We need a mandatory registry
of genetic tests and a risk-based oversight
system.
Health Information Technology
(HIT) - We must focus substantial funding on
HIT to create a research to healthcare services
continuum that leverages current technologies and
achieves privacy, confidentiality, and access with
forward-thinking solutions.
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And last, but not least, let
us know about what you did! Thank you for all your support in
helping to secure funding for much needed health care programs.
Sincerely,  Alice Lara
SADS Foundation
phone: 1-800-STOP SAD
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