SADS Foundation :: Sudden Arrhythmia Death Syndromes Foundation

In today’s busy lives we have to be open to the unexpected and rise to the challenges that come our way.  I can assure you that my overflowing calendar had no room for the news of being diagnosed with LQTS in June of 2000.  As a mother of two teenager daughters, newly enrolled in an MBA program and an executive in a thriving manufacturing business, I was already scheduling back to back.  From dawn to dusk I was on the go….

Having lost my mother in 1971 to Long QT Syndrome, I resolved to make sure that my children grew up with a mother and to take on the mission of spreading the word of the silent killer—Long QT Syndrome.

In the Fall of 2000, I had a Guidant AICD implanted which has lifted the fear that many LQT carriers live under and virtually given me a new lease on life.  Secondly, my family’s story will be featured in their 2001 Annual Report.  This worldwide exposure will bring LQTS to the forefront and will serve as a solid kickoff for future speaking opportunities.

Back in the real world of day-to-day life my schedule is still full and the appointments are back to back—but my passion for spreading the news about LQTS takes top priority. Through speaking engagements and other press opportunities I hope to reach others who are unsuspectingly inflicted by the genetic disorder.