SADS Foundation :: Sudden Arrhythmia Death Syndromes Foundation

As a newly diagnosed person, trying to deal with your insurance company on top of everything else can be overwhelming. Many people with SADS conditions encounter problems when dealing with insurance coverage of the tests or treatment they and their families need. The SADS Foundation Insurance Task Force is getting underway, and will be regularly meeting to assess the insurance needs of the SADS community and to assist us in fulfilling those needs.

The purpose of the Insurance Task Force is:

• To develop resources, materials and strategies to assist SADS families with insurance problems
• To provide support to families with these problems
• To advocate for policies to improve coverage for SADS conditions and for genetic nondiscrimination. 

If you would like help-or just someone to talk with who has been through this process, just let us know at SADS ( This e-mail address is being protected from spam bots, you need JavaScript enabled to view it or 1*800*STOP SAD). You can also post on our Discussion Board to get help from others and tell your story.

If you would like to help with the task force, email or call Michelle at This e-mail address is being protected from spam bots, you need JavaScript enabled to view it or 1*800*STOP SAD.

Genetic Testing--Insurance Resources

Blue Cross Blue Shield TEC Advisory on genetic testing and Long QT Syndrome. The national Advisory states that it should be covered by Blue Cross. Each regional Blue Cross now has to accept this recommendation. You can also download the complete Advisory. BCBStecadvisor

 LQTS and Brugada Sample Letter Your doctor can use this letter &/or you can ask SADS to send a letter, too.

 CPVT Sample Letter Your doctor can use this letter &/or you can ask SADS to send a letter, too.

Here is a summary from FAMILION® of insurance companies and what testing they will pay for--as of April 2008. Familion_coverage_policy

Other insurance tips and resources.