SADS Foundation :: Sudden Arrhythmia Death Syndromes Foundation

The SADS Foundation provides information to and education of medical professionals. Despite research findings and medical publications, genetic conditions that cause sudden cardiac death in the young remain largely hidden-not screened for and thus not diagnosed. As a result many children and young people continue to die each year unnecessarily. The SADS Foundation maintains an active physician education program through our network of researchers, who continually inform and train physicians to diagnose and treat Long QT, through seminars, conferences and medical journal publications. This is an important program in the fight to help prevent undiagnosed arrhythmias in families, which can result in death.

• Publication of an in-depth web site about unexplained sudden death in the young, LQTS, and other primary cardiac arrhythmia disorders.
• Distribute an informational newsletter. Over 30,000 issues mailed out each year.
• Publication of the "Inherited Long QT Syndrome" informational pamphlet in English, Spanish and French and the "Acquired Long QT Syndrome" pamphlet.
• Dissemination of recent genetic and clinical findings concerning LQTS and related conditions.
• Medical Examiner Contact Program.
• Seminars and conferences for physicians and other health care professionals.
• International SADS Conference: Preventing Unexpected Sudden Death in the Young