The patient and family support program provides access to information,
resources, research and support to patients' and families' who are
dealing with genetic conditions that cause sudden cardiac death
in the young or who have lost a loved one to sudden unexplained
death. By providing this service, families receive information that
helps them to make informed decisions. This program also provides
a support network for the families through the Foundation and with
other families throughout the United States. SADS receives a large
number of e-mails and calls on the hotline from parents, families
and friends who have questions. The staff provides assistance and
compassion to those who have experienced a death, and connects them
to physician and family referrals. SADS maintains a database of
families nationwide and connects families with similar circumstances
with each other to foster support in living daily with the effects
of the Long QT Syndrome. Also, SADS provides information, suggestions,
and guidance in helping families and friends forge supportive networking
relationships.
The patient and family support program provides access to information,
resources, research and support to patients' and families' who are
dealing with genetic conditions that cause sudden cardiac death
in the young or who have lost a loved one to sudden unexplained
death. By providing this service, families receive information that
helps them to make informed decisions. This program also provides
a support network for the families through the Foundation and with
other families throughout the United States. SADS receives a large
number of e-mails and calls on the hotline from parents, families
and friends who have questions. The staff provides assistance and
compassion to those who have experienced a death, and connects them
to physician and family referrals. SADS maintains a database of
families nationwide and connects families with similar circumstances
with each other to foster support in living daily with the effects
of the Long QT Syndrome. Also, SADS provides information, suggestions,
and guidance in helping families and friends forge supportive networking
relationships.
