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Providing research and information about SADS conditions is an important part of our work. We want to encourage genetic research in conditions that may lead
to sudden cardiac death in the young. Our role is as a link between
researchers and families. We also advocate for nondiscriminatory
treatment for people who are diagnosed with these conditions. SADS
is committed to supporting efforts that will improve the quality
of life for patients with heart rhythm abnormalities.
- Advocate for individuals struggling to find answers due to the
unexplained death of a loved one.
- Provide referral to and assistance with research projects.
- Work with other organizations-nationally and internationally-to
advocate for measures beneficial to families and patients (AEDs
in community, etc.)
2009 Objectives
Objective 1: Promote and support the SADS insurance project.
Objective 2: Sponsor a SADS Young Investigator Award yearly through PACES.
Objective 3: Encourage continued innovation in medical technology and
treatments, including ICDs, for children at risk of sudden death;
Objective
4: Support efforts
to identify appropriate screening protocols to determine who should be tested,
by what means and how often;
Objective
5: Support funding
increases for federal research efforts and help identify unanswered research
questions and areas for further exploration related to Long QT, Brugada and
other arrhythmia syndromes;
Objective 6: Encourage medical emergency plans that include placement of
automated external defibrillators (AEDs) in all schools throughout the Untied
States. Promote CPR/AED training as a
requirement for high school graduation;
Objective 7: Advocate for nondiscriminatory treatment for people who are
diagnosed with arrhythmia conditions;
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