|
I am new to the forum and I am very confused, hoping I can get some light shed on my current situtation. I understand this isn't a clinical setting.... My daughter is 8, and she has had heart issues for several years. We first found out when she was 3 and past out on the play ground at school and broke her pinky. Then they found out she had NO superior vena cava, and three different types of tachycardia. (SVT, AVNRT, and LGL syndrome) She has now over the last several years seveloped random seziures, and migraines,.. the neurologist says that her brain is completely normal and there is no reason,... he seems to think it is cardiac related. twice in the last two years I have had to rush her to the ER due to fainting at school with a as the school put it "funny heart rate" three weeks ago, I was informed she had a "borderline prolonged QTC of 440" Her pediatrician is very very concerned. Told me to take cpr classes, get an AED, the cardiologist,..... says that it is nothing... doesn't want to see her until January unless she "passes out" again. This is the same cardiologist that told me "yeah so she has svt" she wants attention....She has been getting dizzy alot, sleeping more, and having chest pain with exrcertion. Do I look for another cardiologist 200 miles away, Do I dismiss it,... Do I go out and by a 3000.00 peice of equipment? I hear you either have LQT or you don't we have 3 people in our family that have dropped dead at 25, 37, and 49 of mysterious heart attacks. Thanks for your opinions. And God Bless everyone!
|
Favoured: 0
