The Local Telephone
Support Contact (TS). The TS
volunteer has family members who are diagnosed with a SADS condition and can
share their experience with you. They can ensure that you are familiar with
common resources for diagnosed families and educate you regarding assistance
provided by the national office.
The Local Network Contact
(LN). In addition to sharing their
personal experience with a SADS condition, this person has an interest in
facilitating opportunities for families to meet and/or network. There is
strength in numbers! Join efforts with local families and save lives in your
community by advancing coordinated awareness activities.
If there is not a name listed
for your state please contact Adrienne at
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If you have any
questions including the standard of care for the diagnostic process, treatment
options, genetic testing, or physician referrals, please contact Joanne
Robinson at
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or 800-786-7723
Fundraising. If you have an
interest in fundraising and would like any assistance or ideas please contact
Laura Wall at 800-786-7723 or
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Alabama
The
contact for this state is still being confirmed. If you are interested in
joining a local group as it is established, please e-mail
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.
Thank you!
Alaska
The
contact for this state is still being confirmed. If you are interested in
joining a local group as it is established, please e-mail
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.
Thank you!
Arkansas
Fayetteville:
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Arizona
Phoenix:
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California
El Dorado:
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Pope Valley:
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Costa Mes:
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Colorado
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Connecticut
Monroe:
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Delaware
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Florida
Panama City:
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Georgia
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Hawaii
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Idaho
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Illinois
Lake Villa:
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Indiana
Franklin:
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Iowa
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Kansas
Emporia:
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Kentucky
Louisville:
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Louisiana
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Maine
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Maryland
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Massachusetts
Methuen:
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Michigan
Orchard Lake:
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Minnesota
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Mississippi
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Missouri
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Montana
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Nebraska
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Nevada
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
New Hampshire
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
New Jersey
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
New Mexico
The contact for this state is
still being confirmed. If you are interested
in joining a local group as it is established, please e-mail
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. Thank you!
New York
Rochester:
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Huntington:
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Syracuse:
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Staten Island:
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Glen Cove:
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North Carolina
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
North Dakota
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Ohio
Cleveland:
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Oklahoma
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Oregon
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Pennsylvania
Boothwyn:
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Rhode Island
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
South Carolina
Greenville:
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South Dakota
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Tennessee
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Texas
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Utah
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Vermont
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Virginia
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Washington, D.C.
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Washington State
Snoqualmie:
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Wisconsin
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
Wyoming
The contact for this state is
still being confirmed. If you are
interested in joining a local group as it is established, please e-mail
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. Thank you!
