Heart of the Matter - Ask the Experts

The SADS Foundation, in conjunction with the Mayo Clinic, is delighted to announce the launch of the ground-breaking program: “The Heart of the Matter – Ask the Experts".

This innovative program features questions regarding Long QT syndrome and other SADS conditions, with answers from some of the world experts. Physicians, health care providers and affected families can submit their questions here. The top-ranked questions will be answered by a SADS physician expert.

The idea was formed in the “Long QT Kids & Families” Facebook group, formed by Dan Alatorre who is personally affected by Long QT syndrome (a SADS condition).

"How do you treat SADS patients with asthma?" (Posted December, 2012)

"What is your take on mass screening of athletes and infants for LQTS?" (Posted November, 2012)

"When is a fainting episode a concern for a SADS condition?" (Posted August, 2012)

"Is swimming a trigger for a Long QT Syndrome episode?" (posted July, 2012)

"What is the relationship between Long QT Syndrome (LQTS) and Sudden Infant Death Syndrome (SIDS)?" (posted June, 2012)

"Does the drugs-to-avoid list mean you must always avoid those drugs or can you take some with a physician's guidance?" (posted June, 2012)

"I have a negative test result. What do I do next?" (posted, May 2012)

This pilot video features the first question submitted from Spain and is answered by:

Michael J. Ackerman, MD, PhD,

Windland Smith Rice Cardiovascular Genomics Research Professor
Professor of Medicine, Pediatrics, and Pharmacology
Director, Long QT Syndrome/Genetic Heart Rhythm Clinic
Director, Windland Smith Rice Sudden Death Genomics Laboratory
Consultant, Cardiovascular Diseases and Pediatric Cardiology
President, Sudden Arrhythmia Death Syndromes (SADS) Foundation

"When are they going to know what mutations are dangerous and which ones will never have an event?" (posted April, 2012)

One question will be answered once a month. If you are having a crisis or emergency and need medical assistance, call 911. The SADS staff is trained to answer many other questions and you may be able to find an answer by contacting the SADS staff or by searching our website. If you have any questions, etc. please do not hesitate to contact Anne Maurer, Anne Maurer, Director of Family Support, or call 800-STOP-SAD.

Contact Information

*First Name:

*Last Name:

*E-mail Address:

*Address:

*City:

*State:

*Zip code:

Please tell us a little about yourself (select all that apply)

I am a parent of a child with a SADS condition:

I am an adult diagnosed with a SADS condition::

I am a physician (M.D.):

I am a school nurse:

I am a friend of a person diagnosed with a SADS condition:

I am school personnel, eployed by a school:

I am a nurse, other than a school nurse:

Medical Professional (other than M.D. and R.N):

Question

Submit your question in the space below (500 words max):

*Security code: please type the letters seen to the right:

Online Community
Information for ...
Find it Fast
Warning Signs
- Family history of unexpected, unexplained sudden death under age 40.
- Fainting or seizure during exercise, excitement or startle.
- Consistent or unusual chest pain &/or shortness of breath during exercise.

SADS 7th International Conference:
Nov. 1-3, 2013 Columbus, OH

Heart of the Matter - Ask the Experts

Online Community

Information for ...

Find it Fast

Warning Signs