You can also try contacting local charitable organizations for help in purchasing AEDs.
New and recertified AEDs (that should be lower in price than new ones) can be found online from this website: http://www.aed.com/products. Additional AED Resources including a sample letter for insurance can be found here.
After many months of negotiation and effort on the part of two doctors, a major life insurance company, Metropolitan Life, will consider offering life insurance to some adults with Long QT Type 1. At this time, SADS is not aware of any other life insurance offers for those with SADS conditions.
To be eligible for consideration a person with Long QT must be:
Some commonly appealed issues are:
A first step should be to resubmit the claim, sent with a copy of the denial letter. It may be necessary for the patient's doctor to explain or justify what has been done or is being requested. Sometimes the test or service only will need to be "coded" differently. If questioning or challenging the denial in these ways is not successful, then you may need to:
If you would like to help—or tell us about your experience—please e-mail Lynn Johnson, Director of Family Support, or call 1-801-272-3023.
Check out our other insurance information:
Tips for working with your employer and health insurance
Resources for genetic testing insurance questions
Resources on the Web
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4527 South 2300 East, Suite 104 | Salt Lake City, Utah 84117