Please visit our SADS Online Support Community.
Emotional support is crucial when living with a cardiac arrhythmia and /or the sudden loss of a loved one due to a cardiac arrhythmia. We encourage you to join and/or organize support groups that will facilitate emotional support, learning, healing, and increased knowledge. Because SADS diseases are not common and members are geographically spread out, online support groups are often the easiest way to connect with others who also have SADS diseases.
SADS Foundation Facebook page. Facebook also has a number of disease-specific groups; SADS does not control these groups but they are provided here for your information:
Brugada Syndrome Awareness
Hope for ARVD
LQTS Kids and Families
Long QT Syndrome
Long QT Syndrome Support and Learning Community
CPVT Kids & Families
Women Over 40 with SADS
It is good to identify neutral public facilities that are easily accessible and conducive to quiet, private and support group meeting. Many of these locations are free or can be rented at a discount rate:
SADS is happy to provide literature that can be distributed at your event:
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4527 South 2300 East, Suite 104 | Salt Lake City, Utah 84117