Providing research and information about SADS conditions is an important part of our work. We want to encourage genetic research in conditions that may lead to sudden cardiac death in the young. Our role is as a link between researchers and families. We also advocate for nondiscriminatory treatment for people who are diagnosed with these conditions. SADS is committed to supporting efforts that will improve the quality of life for patients with heart rhythm abnormalities.
Objective 1: Promote and support the SADS pedigree project.
Objective 2: Sponsor a SADS Young Investigator Award yearly through PACES.
Objective 3: Encourage continued innovation in medical technology and treatments, including ICDs, for children at risk of sudden death;
Objective 4: Support efforts to identify appropriate screening protocols to determine who should be tested, by what means and how often;
Objective 5: Support funding increases for federal research efforts and help identify unanswered research questions and areas for further exploration related to Long QT, Brugada and other arrhythmia syndromes;
Objective 6: Encourage medical emergency plans that include placement of automated external defibrillators (AEDs) in all schools throughout the United States. Promote CPR/AED training as a requirement for high school graduation;
Objective 7: Advocate for nondiscriminatory treatment for people who are diagnosed with arrhythmia conditions.
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508 E. South Temple, Suite #202, Salt Lake City, UT 84102