13th Annual Christie's Heartoberfest
09/22/18

This fund raising event is enthusiastically organized by the Tolosky Family in loving memory of their daughter and sister, Christie, who died of a previously undected Long QT in June, 2005.

Baltimore/DC Area SADS Foundation Family Support Picnic
09/29/18

Join SADS families from 11 a.m. to 2 p.m. for a backyard picnic full of great food and great company.

Jonathan R. Cowley Memorial Golf Tournament
10/01/18

Each year this fun event is held to raise money, gather friends, and most importantly, remember Jon. The proceeds of the golf tournament go to raising money for SADS research among other things. To find out more about, Jon, SADS or the Jonathan R.Cowley Memorial Foundation, visit www.sads.org/healing-wall-entries/Jonathan-R--Cowley. 2018 Date of Event is still being determined.

All for Al 9
10/01/18

Allison was such a kind hearted person, always willing to help others. She lived life to the fullest, always having fun, smiling & making us laugh. There is no better way to honor her and keep her memory alive than to share our memories, have a great time and raise money along the way. Please join us at our 8th Annual All for Al, a night to celebrate the life of Allison Bauer. This year we are raising money for some great charities, SADS (Sudden Arrhythmia Death Syndrome) Foundation and Young Hearts for Life.

Rachel's Race for Long QT Syndrome
10/13/18

1 mile walk, 5k and 10k races in memory of Rachel Lancour.

Improving Forensic Pathologic Investigation of Sudden Death in the Young
8/7/2018

Tools, Guidance, and Methods of Cardiovascular Dissection from the Sudden Death in the Young Case Registry

FDA Drug Safety Podcast: FDA limits packaging for anti-diarrhea medicine Loperamide (Imodium) to encourage safe use
8/7/2018

Numerous reports have appeared in the medical literature and the FDA issued a public warning in February of 2018 that Imodium could be a danger to those with LQT Syndrome.

Study Solves Mystery of Genetic-Test results for Patient with Suspected Heart Condition
8/7/2018

Stanford researchers used genetic-editing tools and stem cell technology to uncover whether a genetic mutation linked to a heart rhythm disorder was benign or pathogenic.

Safety Advisory Regarding Medtronic EnTrust ICDs
6/27/2018

On June 21, Medtronic announced a medical device recall affecting a small percentage (less than 0.1%) of EnTrust heart devices in which the battery did not last as long as expected.

Medtronic Voluntary Recall of CRTs and ICDs
2/26/2018

The FDA announced a Class 1 recall by Medtronic of a laundry list of its cardiac resynchronization with defibrillation (CRT-D) and implantable cardioverter-defibrillator (ICD) devices. A manufacturing defect can allow a faulty mix of gases inside these devices, the FDA said, keeping them from delivering shocks for pacing or reviving patients in cardiac arrest. Medtronic device models under recall include those int he Amplia, Claria, Compia, and Viva lines of CRT-Ds and a number of types of Evera and Visia ICDs. Affected devices were manufactured from July 13,2013, through August 8, 2017.