14th Annual Christie's Heartoberfest
09/28/19

This family friendly event will start at 1 p.m. with no admission charge has something for everyone: food and drinks, kids and adult door prizes, dozens of raffle items and more added continuously. Funds from raffle sales and donations support awareness efforts for cardiac arrhythmia conditions especially in young people. 400,000 people die in the U.S. annually from sudden cardiac arrest and in 2005, one of them was our Christie Tolosky. Help raise awareness so no other family has to lose their Christie.

2nd Annual Stevie Grieshammer High School Preview Meet
10/01/19

This swim meet has been organized by the members of Great Lakes Sailfish swim team to remember and honor Stevie Grieshammer who loved swimming competitively with the team.  He was a great teammate who encouraged all to work hard and be the best swimmer they could be.

4th Annual Rachel's Race for Long QT Syndrome
10/05/19

The 4th Annual 5k and 10k run that will take place on scenic roads and the farm. The 1 mile walk will take place on the farm with family activities along the way. This race is in memory of Rachel Lancour who died in her sleep May 20, 2015 and was a victim of Long QT Syndrome.

Baltimore/DC Area SADS Foundation Family Support and Education Meeting
11/02/19

Once more, join medical professionals from John Hopkins Hospital and other families with SADS to hear the latest in care and research and have your questions answered.

AHA Scientific Sessions
11/16/19

The AHA Scientific Sessions serve the latest cutting-edge science and education for those in the fields of cardiovascular clinical, population, or basic science. Programming has a clinical focus on Saturday and Sunday and basic science focus on Sunday and Monday. The scope and quality of the scientific programming make Scientific Sessions the premier cardiovascular research and instructional meeting in the world with over 1,000 invited speakers of the world’s top leaders in the areas of cardiovascular disease.

Testing and Family Screening Lacking Among Young Victims of Sudden Cardiac Arrest
9/17/2019

ess than 4% of relatives of young cardiac arrest victims receive information on family screening that could prevent further deaths, according to research presented today at ESC Congress 2019 together with the World Congress of Cardiology. "All first-degree relatives should be advised to undergo family screening and eventually genetic testing if an inherited cardiac disease is suspected," he continued. "This helps clarify the diagnosis of their loved one and can trigger preventive measures such as lifestyle modification, beta-blockers, or an implantable cardioverter-defibrillator (ICD) to avoid deaths in relatives.

Decline in sports-related sudden cardiac death linked with rise in bystander resuscitation
9/17/2019

Fewer sports-related sudden cardiac arrest victims die nowadays, a trend linked with increased bystander cardiopulmonary resuscitation (CPR), reports a study presented today at ESC Congress 2019 together with the World Congress of Cardiology . The late breaking study also found that the incidence of sudden cardiac arrest during sports has not changed over the last decade.

Is Genetic Testing for Heart Disease Right for Me?
8/13/2019

Heart disease is a leading cause of death worldwide and often runs in families.

Genetic Counseling Medicare Payment Bill Introduced in Congress
8/13/2019

A bill granting the US Centers for Medicare & Medicaid Services the authority to recognize certified genetic counselors as healthcare providers and reimburse them for their services was introduced in the US Congress last week.

Parents Assume Sports Physical is Enough
7/10/2019

There are non-profits that offer free EKG tests, and the Peyton Walker Foundation frequently holds them at various schools in central Pennsylvania. These screening events depend on awareness, which is another challenge in combating cardiac arrest.