CANCELLED: UCSF Family Support Meeting 2020
04/25/20

The UCSF Comprehensive Genetic Arrhythmia Program invites you to a one-day education seminar for patients with inherited heart rhythm disorders or cardiomyopathies and their families.

2nd Annual Hops for Hearts
05/02/20

Participate in an afternoon full of food, drink, and family friendly fun. Expect games, raffles, face paint, and more! Admission is free! Proceeds from beer, food, apparel and raffle ticket purchases will be donated to the SADS Foundation in memory of Kathleen Formica Neal and in honor of Alanna Kathleen Mundondo (living and thriving with LQTS)!

5th Annual Gertsberg Memorail 5K
05/21/20

Welcome to the Mike Gertsberg Memorial 5K. This is the4th running of an annual charity 5K held in honor of the memory of Dr. Mikhail Gerstberg, a respected and beloved Radiology Resident at Hartford Hospital who passed away suddenly in 2016. Every year we gather in remembrance of our lost colleague and friend who touched the lives of countless people in his short time on this Earth. All proceeds are donated directly to the Sudden Arrhythmia Death Syndromes Foundation to further fund research to better understand sudden cardiac death.

15th Annual Christie's Heartoberfest
10/03/20

This family friendly event will start at 1 p.m. with no admission charge has something for everyone: food and drinks, kids and adult door prizes, dozens of raffle items and more added continuously. Funds from raffle sales and donations support awareness efforts for cardiac arrhythmia conditions especially in young people. 400,000 people die in the U.S. annually from sudden cardiac arrest and in 2005, one of them was our Christie Tolosky. Help raise awareness so no other family has to lose their Christie.

Testing and Family Screening Lacking Among Young Victims of Sudden Cardiac Arrest
9/17/2019

ess than 4% of relatives of young cardiac arrest victims receive information on family screening that could prevent further deaths, according to research presented today at ESC Congress 2019 together with the World Congress of Cardiology. "All first-degree relatives should be advised to undergo family screening and eventually genetic testing if an inherited cardiac disease is suspected," he continued. "This helps clarify the diagnosis of their loved one and can trigger preventive measures such as lifestyle modification, beta-blockers, or an implantable cardioverter-defibrillator (ICD) to avoid deaths in relatives.

Decline in sports-related sudden cardiac death linked with rise in bystander resuscitation
9/17/2019

Fewer sports-related sudden cardiac arrest victims die nowadays, a trend linked with increased bystander cardiopulmonary resuscitation (CPR), reports a study presented today at ESC Congress 2019 together with the World Congress of Cardiology . The late breaking study also found that the incidence of sudden cardiac arrest during sports has not changed over the last decade.

Is Genetic Testing for Heart Disease Right for Me?
8/13/2019

Heart disease is a leading cause of death worldwide and often runs in families.

Genetic Counseling Medicare Payment Bill Introduced in Congress
8/13/2019

A bill granting the US Centers for Medicare & Medicaid Services the authority to recognize certified genetic counselors as healthcare providers and reimburse them for their services was introduced in the US Congress last week.

Parents Assume Sports Physical is Enough
7/10/2019

There are non-profits that offer free EKG tests, and the Peyton Walker Foundation frequently holds them at various schools in central Pennsylvania. These screening events depend on awareness, which is another challenge in combating cardiac arrest.