Advocacy

SADS advocates for nondiscriminatory treatment for people who are diagnosed with a SADS condition. SADS is committed to supporting efforts that will improve the quality of life for patients with heart rhythm abnormalities.

• Advocate for individuals struggling to find answers due to the unexplained death of a loved one. 

• Provide referral to and assistance with research projects.

• Work with other organizations-nationally and internationally-to advocate for measures beneficial to families and patients (AEDs in community, etc.)

 
SADS Supports Telehealth

SADS Foundation supports telehealth for our community. It has been extremely useful during COVID, of course. But we believe that it has also opened an opportunity that will allow folks to “see” SADS experts even when they are not in the town and thus greatly improve access for families.

Along with 40 other patient advocacy organizations, SADS joined a collective effort to send letters to major insurers requesting waiver of patient cost sharing for telehealth services during COVID-19 pandemic.

NORD Telehealth Policies
AHA Telehealth Policy Guidance