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Actions & Alerts
2019 Actions
NIH Research Budget Cuts
2018 Actions
RARE Act
2017 Actions
Tax Bill will Affect Health Care
Affordable Health Care Advocacy (1/18/2017)
2015 Actions
Six Years of GINA. What an Accomplishment!
2013 Actions
Genetic Testing for LQTS and Medicare (7/15/13)
2011 Actions
Capitol Hill Study Shows Importance of Electronic Communications by Constituents
SADS Young Investigator Award in Cardiac Channelopathies
2010 Actions
Urge Congress to Support Public Access to Federally Funded Research
Make your voice heard on NIH funding
Petition for Health Care Reform
Time for Meaningful Healthcare Reform
CDC Heart Disease and Stroke Prevention Program Funding
HEART For Women Act
New movie dedicated in memory of SADS victim
Pre-Existing Condition Insurance Plan (PCIP)
NHLBI Working Group
2009 Actions
SADS Goes to Washington, D.C.
SADS Young Investigator Award Recipient 2009
Josh Miller HEARTS Act
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Warning Signs
Family history of unexpected, unexplained sudden death under age 40.
Fainting or seizure during exercise, excitement or startle.
Consistent or unusual chest pain &/or shortness of breath during exercise.