Supporting Families. Saving Lives.
Today marks the six year anniversary of the Genetic Information Non-Discrimination Act (GINA). The Genetic Information Nondiscrimination Act of 2008 (GINA) is a federal law that protects individuals—like our SADS families--from genetic discrimination in health insurance and employment. The SADS Foundation applauds all of you—and the many other groups—who worked so hard for so many years to pass GINA.
Please learn more about GINA here.
The SADS Foundation is proud to have been a part of making this bill law, and it will continue to advocate for the rights of families it serves.
The passage of GINA means three things for those of us concerned about the misuse of genetic information: Prohibiting group health plans and issuers offering coverage on the group or individual market from basing eligibility determinations or adjusting premiums or contributions on the basis of genetic information. They cannot request, require or purchase the results of genetic tests, or disclose genetic information. Prohibiting issuers of Medigap policies from adjusting pricing or conditioning eligibility on the basis of genetic information. They cannot request, require or purchase the results of genetic tests, or disclose genetic information. Prohibiting employers from firing, refusing to hire, or otherwise discriminating with respect to compensation, terms, conditions or privileges of employment. Employers may not request, require or purchase genetic information, and may not disclose genetic information. Similar provisions apply to employment agencies and labor organizations.
Download SADS Press Release-GINA Passes the Senate-4/28/08