Supporting Families. Saving Lives.
With school just around the corner, make sure you do the following to help your school environment be as safe as possible for your SADS child.
( Download this_Checklist)
Ask to meet with the principal, school nurse, psychologist and 504 plan people. At the meeting:
___ 1. Develop an Individualized School Health Care Plan for your child. This plan may also be called a 504 plan or another name (see this list of definitions) but, no matter what its called, it should include everything on our recommended plan. To develop the plan:
___ 2. To ensure that your child’s Individualized School Health Care Plan is in place and working, verify the following:
___ 3. Make a plan to ensure that all above recommendations are in place.
___ 4. Is your school a Heart Safe SchoolTM ?
a) Ask the principal what the school’s Emergency Medical Plan is, and whether all staff are trained on their role. (SADS recommendations for these plan and samples) b) Check to see if the school has an AED, a plan for the use of the AED and whether all appropriate staff is trained to use an AED. c) Initiate the Heart Safe School Accreditation process.
If you feel like your school is not able to provide a safe environment and need additional help, call appropriate personnel at the school district level. They will often advocate for your child, and educate you regarding the federal law pertaining to a child with a disability (your child’s SADS condition is considered a disability) and your educational rights.
If you aren't able to get your child's school to work with you on this, please let us know so we can get an idea of the problems you're encountering. And, if you're still not successful, you can file a complaint with your regional Office of Civil Rights of the U.S. Department of Education.
If you wish to file a 504 complaint, go to www.ed.gov/about/offices/list/ocr/complaintintro.html. Or call (800) 421-3481 (TDD) (877) 521-2172 (877) 521-2172. For additional information about Section 504 visit the Dept of Ed website: www.ed.gov/about/offices/list/ocr/504faq.html.