Supporting Families. Saving Lives.
NAME Position Paper on Genetic Samples Cardiac Autopsy using Whole Exome Sequencing LQTS Over Age 40
ACC-AHA-ESC_Guidlines_on_Ventricular Arrhythmias
Genetic Counseling and HCM
Sudden Death in the Young 2009
LQTS and Fever
Sympathectomy and CPVT_Wilde
LQTS - Who's at Risk for SCD_Berul Diagnostic Evaluation of Patients with LQTS: Making the Diagnosis: Beyond the 12 Leads and Without the Genotype (2011)
Pregnancy & Long QT Syndrome
Sports and Exercise--SADS Recommendations and Bethesda Conference
ICDs and Young People--SADS Recommendations and Scientific Articles
Long QT Syndrome in the Young--Diagnostic and Therapeutic Update
SADS Safe Schools--includes Medical Emergency Plans for Schools and Care Plans for SADS kids
Family Pedigree Project
When a Child Dies Suddenly--includes specifics for pathologists and medical examiners
Genetic Testing for SADS Conditions--including insurance tips, letters of medical necessity