Supporting Families. Saving Lives.
Read the latest about SADS conditions: news on promising treatments, legislation, updates on the foundation and its events, and people living and thriving with SADS conditions.
Former Google exec is teaming up with the Mayo Clinic to help prevent a major cause of sudden death
• AliveCor and the Mayo Clinic are working together to develop machine learning technology to help prevent sudden death. • The Mayo Clinic is investing an additional round of financing into AliveCor. • AliveCor's CEO, Vic Gundotra, formerly led engineering for social products at Google.
AED-Carrying Drones May Speed Resuscitation
Test flight study showed more than 16-minute advantage over EMS
SADS Board Member and SADS Scientific Advisor elected as a Fellow of the American Heart Association (FAHA)
She was 18 Weeks Pregnant When Something Went Wrong. Now She Has a Christmas Miracle
Something went wrong at 18 weeks pregnant, but it turned into a Christmas Miracle!
ER Nurse Gives Back to First Responders After They Saved Her Life
After being saved by first responders, ER Nurse give back.
Renowned Cardiologist Arthur J. Moss, Pioneer of Research and Treatment in Sudden Death, Passes Away
Medtronic Voluntary Recall of CRTs and ICDs
The FDA announced a Class 1 recall by Medtronic of a laundry list of its cardiac resynchronization with defibrillation (CRT-D) and implantable cardioverter-defibrillator (ICD) devices. A manufacturing defect can allow a faulty mix of gases inside these devices, the FDA said, keeping them from delivering shocks for pacing or reviving patients in cardiac arrest. Medtronic device models under recall include those int he Amplia, Claria, Compia, and Viva lines of CRT-Ds and a number of types of Evera and Visia ICDs. Affected devices were manufactured from July 13,2013, through August 8, 2017.
Safety Advisory Regarding Medtronic EnTrust ICDs
On June 21, Medtronic announced a medical device recall affecting a small percentage (less than 0.1%) of EnTrust heart devices in which the battery did not last as long as expected.
Study Solves Mystery of Genetic-Test results for Patient with Suspected Heart Condition
Stanford researchers used genetic-editing tools and stem cell technology to uncover whether a genetic mutation linked to a heart rhythm disorder was benign or pathogenic.
FDA Drug Safety Podcast: FDA limits packaging for anti-diarrhea medicine Loperamide (Imodium) to encourage safe use
Numerous reports have appeared in the medical literature and the FDA issued a public warning in February of 2018 that Imodium could be a danger to those with LQT Syndrome.
Improving Forensic Pathologic Investigation of Sudden Death in the Young
Tools, Guidance, and Methods of Cardiovascular Dissection from the Sudden Death in the Young Case Registry
NIH Receives $2 Billion in Funding
Thanks to the tireless efforts of advocates everywhere, the National Institutes of Health (NIH) will receive another increase of $2 billion to conduct medical research! This marks the 4th straight year that NIH has received an increase of at least $2 billion and it would not have been possible without your efforts!
Muirlands Middle School Earns Top Honor for Heart Safety in La Jolla
Muirlands Middle School students receive CPR and AED training through PE classes.
Wilodene Gist Celebrates Her 90th Birthday
Wilodene Gist celebrates her 90th Birthday December 8th 2018. She has lived 75 years undiagnosed with Long QT Syndrome Type 2.