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11th Annual International
SADS Foundation Conference

Practical Management and Novel Insights of Channelopathies and Cardiomyopathies

October 26th - October 28th 2018

Just a few highlights! To view all the photos please check out our Flicker account.

Our special co-hosts David Bradley, MD, and Brynn Dechert-Crooks, NP, from the University of Michigan C. S. Mott Children's Hospital. We send a huge thank you to them and their team for helping us to make this such a wonderful conference!

Katrin Lutjering from Germany attended the 3rd Annual International SADS Affiliates meeting which was held on Thursday before the conference began with representatives from the United States, United Kingdom, Hong Kong, Mexico, and Taiwan either in attendance or on Skype.

CME Sessions Novel Insights and Practical Management of Channelopathies and Cardiomyopathies had an attendance of more than 80 medical professionals and featured keynote speaker Dr. Peter Schwartz from Italy. Dr. Schwartz and many others medical professionals stayed to speak with our families during the rest of the weekend.

The favorite event of the conference was the open house and reception at the University of Michigan Big House. Guests enjoyed tossing footballs on the field and socializing over food and drink in the VIP room.

Dr. Mike Ackerman after receiving his award with all of the SADS Foundation staff members: Marcia, Jan, Alice, Jasmine, Erin, and Rachel!

Family Sessions featured nearly 100 attendees from the United States, England, Germany, and Hong Kong. A variety of activities were presented including expert talks, fireside chats, and breakout sessions about special topics and specific diseases. Families enjoyed seeing old friends again and making new friends who understand what it means to have a SADS condition, but to continue to live a full and rewarding life.

Teens/Kids Sessions brought together nearly 40 youth who learned about their conditions as well as participated in the University of Michigan Team Building activities. Fast friends were made over the weekend and they'll continue to keep in touch.

Kids' Wall with all of their photos and stories.

Healing Wall with tributes of the loved ones we have lost to SADS conditions.

The Jeremy Whiddon Family honored Dr. David Bradley and team who performed an ablation on their son who had WPW and saved his life.

Mary Ann Ciciarelli on behalf of the Timothy Syndrome Alliance honors Dr. John Clark who has cared for Rhonda Moag for almost her entire life.

Carrole Baker won the AED package donated by Cardio Partners for a family who were early registrants.

Giana Chiaventone won the handcrafted SADS Quilt made from our past and present T-shirts. The SADS Foundation extends our heartfelt appreciation to Sharon Lentino and family for making this beautiful piece of cozy art.

And . . .the kids and teens with Program Coordinator Rachel Goss.

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- Fainting or seizure during exercise, excitement or startle.
- Consistent or unusual chest pain &/or shortness of breath during exercise.

Practical Management and Novel Insights of Channelopathies and Cardiomyopathies

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