Supporting Families. Saving Lives.
Friday, September 30th
9:00 RegistrationSADS Staff and Volunteers
10:15 SADS Conference Keynote Address Stephen Kingsmore, MD, DSc
11:00 Lunch(on your own)
12:00 Registration SADS Staff and Volunteers
1:00 SADS 101 Presentation
1:30 Fundraising
1:50 Family Support and Awareness
2:10 Heart Safe Schools Accreditation
2:40 10” break
Future Treatments and Research --- What It Means for You – Sponsored by the Family Support Committee
2:50 Introduction Alan London, MD
3:00 Patient Centered Outcomes Research/Health eHeart
3:20 Gene Therapy
3:50 Exercise Research
Take Steps to Stop SADS
4:50 Featured Speakers
5:00 T-shirt pickup for “Take Steps to Stop SADS”Conference Attendees
5:30 Buses leave for Mission Bay “Take Steps to Stop SADS”Conference Attendees
7:00 Poolside Reception at hotel Beer, Wine and Heavy Hors d’Oeuvres
Saturday, October 1st
7:00 Registration/Breakfast & CoffeeBuffet Style
8:00 Welcome Message & IntroductionJames Perry, MD & Michael Ackerman MD/PhD
8:10 Cutting Edge Research Michael Ackerman MD/PhD
8:45 New Technology
9:20 Your Personal Risk Profile
9:55 15” BreakLight Refreshments
10:10 Fireside ChatMichael Ackerman MD/PhD
11:50 Lunch and Volunteer AwardsSADS Staff and Board of Trustees
12:50 Guidebook for Living Well after a SADS DiagnosisJennifer White, MD
Breakout Sessions (choose one session for each time slot)
1:35 to 2:15
LQTS 1
LQTS 2
LQTS 3
Brugada Syndrome
CPVT
ARVD, WPW, SQT
Timothy Syndrome Alliance
2:20 to 3:00 Session Two
ICDs & Other Medical Devices
Being Your Own Advocate
Women and Hormones
Young Professionals
Support for Significant Others
3:05 to 3:45 Session Three
Dealing with Grief
Finding a Cure: Research Participation for You and Your Child
Parenting
Schools, IEPs, 504 Plans
HSSA Training
3:50 to 4:30 Session Four
4:35 Breakout Session Key MessagesFacilitators
4:45 Healing Wall CeremonySADS Staff and Conference Attendees
5:30 Dinner on your own
Sunday, October 2nd
8:30 Breakfast & CoffeeBuffet Style
9:00 Pregnancy and Starting a Family
10:15 Medication Management 10:45 15" Break Light Refreshments 11:00 The Screening Debate
11:30 Take Steps to Stop SADS – Taking it Home
11:40 Youth and Teens PresentConference Attendees
12:10 Adjourn