9th International SADS Foundation Conference
Family Session Agenda
Family Sessions Draft Agenda

12:00   Registration SADS Staff and Volunteers

1:00     SADS 101 Presentation

1:30     Fundraising

1:50     Family Support and Awareness

2:10     Heart Safe Schools Accreditation

2:40     10” break

Future Treatments and Research --- What It Means for You – Sponsored by the Family Support Committee

2:50     Introduction Alan London, MD

3:00     Patient Centered Outcomes Research/Health eHeart

3:20     Gene Therapy

3:50     Exercise Research

Take Steps to Stop SADS

4:50     Featured Speakers

5:00     T-shirt pickup for “Take Steps to Stop SADS”Conference Attendees

5:30     Buses leave for Mission Bay “Take Steps to Stop SADS”Conference Attendees

7:00     Poolside Reception at hotel Beer, Wine and Heavy Hors d’Oeuvres

Saturday, October 1st

7:00     Registration/Breakfast & CoffeeBuffet Style

8:00     Welcome Message & IntroductionJames Perry, MD & Michael Ackerman MD/PhD

8:10     Cutting Edge Research Michael Ackerman MD/PhD

8:45     New Technology

9:20     Your Personal Risk Profile

9:55     15” BreakLight Refreshments

10:10   Fireside ChatMichael Ackerman MD/PhD

11:50   Lunch and Volunteer AwardsSADS Staff and Board of Trustees

12:50   Guidebook for Living Well after a SADS DiagnosisJennifer White, MD

Breakout Sessions (choose one session for each time slot)

1:35 to 2:15

LQTS 1

LQTS 2

LQTS 3

Brugada Syndrome

CPVT

ARVD, WPW, SQT

Timothy Syndrome Alliance

2:20 to 3:00    Session Two 

ICDs & Other Medical Devices

Being Your Own Advocate

Women and Hormones

Young Professionals 

Support for Significant Others

3:05 to 3:45    Session Three

Dealing with Grief

Finding a Cure: Research Participation for You and Your Child

Parenting

Schools, IEPs, 504 Plans

HSSA Training

3:50 to 4:30 Session Four

ICDs & Other Medical Devices

Being Your Own Advocate

Parenting

Finding a Cure: Research Participation for You and Your Child

Schools, IEPs, 504 Plans

4:35     Breakout Session Key MessagesFacilitators

4:45     Healing Wall CeremonySADS Staff and Conference Attendees

5:30     Dinner on your own

 Sunday, October 2nd

8:30      Breakfast & CoffeeBuffet Style

9:00     Pregnancy and Starting a Family

10:15    Medication Management

10:45    15" Break                                                                                          Light Refreshments                             
11:00   The Screening Debate

11:30   Take Steps to Stop SADS – Taking it Home

11:40   Youth and Teens PresentConference Attendees

12:10   Adjourn