5th Annual International
SADS Foundation Conference

Preventing Unexpected Suddent Death in the Young

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Information for Medical Professionals (continuing education)
Conference Faculty & Committee
SADS Connect: Kids Track
View conference brochure (PDF)
Conference Agenda
Location and Accommodations
Thanks to our generous sponsors!

October 1 - 2, 2011, Atlanta, Georgia

The Sudden Arrhythmia Death Syndromes (SADS) Foundation is dedicated to saving the lives and supporting the families of children and young adults who are genetically predisposed to sudden death due to hearth rhythm abnormalities.

OBJECTIVES

At the conclusion of this symposium, the participants will be able to:

Discuss the complexities of and new developments in the diagnosis of inherited channelopathies, including: Long QT syndrome, Brugada syndrome, Catecholaminergic Polymorphic Ventricular Tachycardia and Short QT Syndrome.
Evaluate the importance of developing and expanding a family pedigree and prospective case finding and early treatment for the prevention of these unnecessary deaths and methods available.
Discuss the state of the art ion channelopathy care—new innovations and knowledge, current best practices
Have a better understanding of living and thriving with SADS conditions.
Analyze the genetics, pathophysiology, symptoms, presentations, the diagnosis, and management of these conditions.

WHO SHOULD ATTEND

This conference is designed to discuss the complex problems associated with syncope and unexpected cardiac death in children and young adults. It will be particularly valuable to:

General Practitioners, Pediatricians, Pediatric Cardiologists, Cardiologists, Nurses/Nurse Practitioners, Physician’s Assistants and Emergency Personnel
Families living with a cardiac rhythm disorder (LQTS, Brugada, ARVD, HCM, etc.)
Families with a history of sudden unexplained death of an otherwise healthy child or young adult
Amateur sports representatives
Teachers & coaches
Anyone who has a special interest in cardiac rhythm disorders and how these disorders predispose children and young adults to sudden cardiac death

Discussion time to allow interaction with the faculty and ask questions will be provided within the context of this conference.

All programs are intended to be accessible to all persons. If you have a disability and require assistance in order to fully participate in the conference activities, please call the conference coordinator to discuss your specific needs.

SADS CONNECT (Ages 9-18 years old):

The 2011 International SADS Conference will give young people from around the globe a chance to make connections during SADS Connect. Friendships from the last conference will be rekindled and new friendships will begin to grow. SADS Connect, led by young people with SADS, will include relaxing discussions and informative sessions on relevant topics. Speakers will include Margaret Striepert, D.O., Erin Demo, M.S., Susan Etheridge, M.D., Alison Ellison, R.N., and Michael Ackerman, M.D., P.h.D. Expect plenty of time between speakers for additional services or just hanging out. For a fun and memorable experience with other young people who have been affected by SADS, don't miss SADS Connect on Saturday and Sunday.

SADS Connect Sessions will include:

Heartworks: An Inside Look
Dealing With It: Coping with LQTS
Try It: CPR/AED training
Where Did This Come From?: The Genetic Side of Things
Just a Minute: Quick Answers to Your LQTS Questions

HEALING WALL

"It was both humbling and inspiring to learn of families' grief, courage and bravery living lives affected by cardiac arrhythmias".

During our past International SADS Conferences, people were able to share and read stories from the Healing Wall. Conceived and brought to life by Patti Androsko, the Healing Wall greatly enhances the spirit of SADS conferences. Pictures and written stories are neatly arranged and displayed for all participants to see.

Stories and photos In Memory Of or In Honor Of SADS loved ones will be displayed at the Conference. For a minimum contribution of $10, you can share your loved one's story and create a keepsake to take home and frame. A short ceremony to celebrate their lives will take place before the Gala dinner on Saturday night. Send your 4X6 photo and a 4X6 story (about 200 words) to:
Bonnie Billings at Bonnie@sads.org or mail to 508 East South Temple, Suite 202, Salt Lake City, UT 84102. Email Bonnie or call 1-800-STOP-SAD for questions.

AGENDA, Saturday, October 1, 2011

7:30 – 7:45       Registration and Continental Breakfast

7:45 –8:00       Intro/Welcome

8:00 – 8:45       Peter Fischbach, MD
          LQTS versus CPVT versus SQTS: Diagnosing Channelopathies

8:45 – 9:30       Silvia Priori, MD, PhD
                          What Have We Learned from Risk Stratification for Channelopathies: Are
                           Channelopathies Always Life-Threatening?

9:30 – 10:15      Susan Etheridge, MD
                        Challenges of Living with SADS: Is the Glass Half Empty or Half Full?

10:15 – 10:45   Break

10:45 – 11:30    Michael Ackerman, MD, PhD
                          State of Pre- and Post-Mortem Genetic Testing for the Cardiac
                          Channelopathies

11:30 – 12:15   Erin Demo, MS, CGC
                          Genetic Counseling: The Role of Family and Detailed Family Pedigree

12:15 – 2:15    Learn and Lunch
                          Silvia Priori, MD, PhD
                          A View Over the Horizon: What Will Cardiac Channelopathy Diagnosis
                          and Management Look Like in 2020?

2:15 - 3:00       Philip Saul, MD
                         ICDs: The Upside and the Downside

3:00 - 3:45       Michael Ackerman, MD, PhD
       Latest Treatment Options for the Cardiac Channelopathies

3:45 – 4:30    Daniel Roden, MD, CM
                       LQTS and Brugada Drug Lists: How are They Constructed? What do They                Mean?

4:30 – 5:00    Healing Wall Ceremony and Candle Lighting

6:00 – 9:00       Gala 20th Anniversary and Volunteer Awards Dinner
                        hosted by Michael Vincent, MD.

Click here to see the full agenda for both Saturday and Sunday.

Continuing Education Information
Children's Healthcare of Atlanta is accredited by the Medical Association of Georgia to provide continuing education for physicians.

Children's designates this live activity for a maximum of 7 AMA PRA Category 1 credits™.Physicians should only claim credit commensurate with the extent of their participation in the activity.

Children’s Healthcare of Atlanta resolves to ensure that its educational mission, and particularly its continuing medical education programs, is not influenced by the special interests of any corporation or individual associated with its programs. While having a financial interest or professional affiliation with a corporation does not necessarily influence a speaker’s presentation, the standards of the Accreditation Council for Continuing Medical Education require that this relationship be disclosed to the audience. Any potential conflict of interest will be made known to participants at the beginning of the program

Disclaimer
This educational activity does not necessarily reflect the views, opinions, policies, or procedures of Children’s Healthcare of Atlanta (CHOA), its staff or representatives. CHOA cannot and does not assume any responsibility for the use, misuse, or misapplication of any information provided.

CONFERENCE LOCATION/ACCOMMODATIONS

The conference will be held at the Atlanta Marriott Buckhead Hotel & Conference Center, 3405 Lenox Road NE, Atlanta, Georgia 30326. The Marriott Buckhead is within walking distance of the business, shopping and entertainment district and 30 minutes from Hartsfield Atlanta International Airport. Guests can travel by Metropolitan Atlanta Rapid Transit Authority (MARTA) from the airport to the Buckhead station, which is just a short walk from the Marriott Buckhead.

The room rate for this conference is $109. To make a reservation, call 404.461.9710 or 800.228.9290. Mention that you are attending the SADS conference and make reservations prior to September 11, 2011 to receive this reduced rate at the hotel.


PROGRAM DIRECTOR

Robert M. Campbell, MD
Chief Medical Officer, Sibley Heart Center
Director, Sibley Heart Center Cardiology
Children’s Healthcare of Atlanta
Associate Professor of Pediatrics
Emory University School of Medicine
Atlanta, GA

FACULTY

Michael J. Ackerman, MD, PhD
Director, Long QT Syndrome/Inherited Arrhythmia
Clinic and Sudden Death Genomics Laboratory
Mayo Clinic
Assistant Professor of Medicine, Pediatrics and
Molecular Pharmacology
Mayo Medical School
Rochester, MN

Stuart Berger, MD
Medical Director-The Heart Center
Children's Hospital of Wisconsin
Milwaukee, WI

Erin Demo, MS, CGC
Certified Genetic Counselor
Sibley Heart Center
Children’s Healthcare of Atlanta
Atlanta, GA

Susan P. Etheridge, MD
Professor of Pediatrics
University of Utah
Assistant Director of Division of Pediatric Cardiology
Primary Children’s Medical Center
Salt Lake City, Utah

Alison Ellison, RN
Coordinator, Project S.A.V.E.
Children’s Healthcare of Atlanta
Atlanta, GA

Peter Fischbach, MD
Pediatric Cardiology, Pediatrics
Sibley Heart Center
Children’s Healthcare of Atlanta
Atlanta, GA

Alice Lara, RN
President & CEO
Sudden Arrhythmia Death Syndromes (SADS)
Foundation
Salt Lake City, UT

Silvia Priori, MD, PhD
Director, Cardiovascular Genetics Program Professor of Medicine The Leon H. Charney Division of Cardiology
Professor of Medicine, New York University
New York City, NY
Director of Molecular Cardiology and Electrophysiology
Fondazione Salvatore Maugeri, Pavia, Italy

Daniel M. Roden, MD, CM
Division of Clinical Pharmacology
Vanderbilt University Medical Center
Nashville, TN

Philip Saul, MD
Medical University of South Carolina
Children's Heart Center of South Carolina
Charleston, SC

Margaret Strieper, DO
Director of Pacing and Electrophysiology
Sibley Heart Center Cardiology
Children’s Healthcare of Atlanta
Assistant Professor of Pediatrics
Emory University School of Medicine
Atlanta, GA

G. Michael Vincent, MD
Founder and Member Emeritus
SADS Foundation
Salt Lake City, UT

COMMITTEE

Jane Darrish RN, MSN, CCMEP
Senior Program Coordinator
Children’s Healthcare of Atlanta
Atlanta, GA

Erin Demo, MS, CGC
Certified Genetic Counselor
Sibley Heart Center Cardiology
Children’s Healthcare of Atlanta
Atlanta, GA

Alison Ellison, RN
Coordinator, Project S.A.V.E.
Children’s Healthcare of Atlanta
Atlanta, GA

Jennifer King
Marketing and Public Relations
Children’s Healthcare of Atlanta
Atlanta, GA

Alice Lara
President & CEO
Sudden Arrhythmia Death Syndromes
(SADS) Foundation
Salt Lake City, UT

Christin Post LMSW, ACSW
Social Worker
Sibley Heart Center Cardiology
Children’s Healthcare of Atlanta
Atlanta, GA

Meagan Potts
Public Relations Coordinator
Children’s Healthcare of Atlanta
Atlanta, GA

Presented by the SADS Foundation              Sponsored by Children's Hospital of Atlanta

Online Community
Find it Fast
Warning Signs
- Family history of unexpected, unexplained sudden death under age 40.
- Fainting or seizure during exercise, excitement or startle.
- Consistent or unusual chest pain &/or shortness of breath during exercise.

5th Annual International SADS Foundation Conference

Preventing Unexpected Suddent Death in the Young

October 1 - 2, 2011, Atlanta, Georgia

AGENDA, Saturday, October 1, 2011

Online Community

Find it Fast

Warning Signs

5th Annual International
SADS Foundation Conference