How does a SADS condition impact you? Please tell us about your own personal experience or how it has impacted someone you are close to.
my 2 year old daughter was diagnosed with Long QT Syndrome, a SADS condition, at birth. After genetic testing, it was doscovered that I have it, too, although we are both asymptomatic.

Why do you volunteer for the SADS Foundation?
It is a worthy and professional organization that can help my child and others.

Please tell us a little about what kind of volunteer activities you do for the SADS Foundation. (i.e. participation in SADS awareness campaigns, responding to advocacy action alerts, attending/organizing SADS events in your community, etc.)
I created a Facebook page to discuss LQTS, which has over 400 members in just 5 months; I was able to do a video with LQTS expert Dr Mike Ackerman of the Mayo Clinic; my wife made SADs part of the IBM charitable giving program

What is your favorite part about volunteering for the SADS Foundation?
It feels good to help others

Do you have any advice or final thoughts for others who might be interested in getting more involved with the SADS Foundation?
Everyone should!

Do you have any additional comments?
SADS is a great organization with some great people that I have had the pleasure to meet, and I appreciate all that they do.