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Volunteer to Fight SADS!
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Volunteer: Dan Alatorre
How does a SADS condition impact you? Please tell us about your own personal experience or how it has impacted someone you are close to.
my 2 year old daughter was diagnosed with Long QT Syndrome, a SADS condition, at birth. After genetic testing, it was doscovered that I have it, too, although we are both asymptomatic.
Why do you volunteer for the SADS Foundation?
It is a worthy and professional organization that can help my child and others.
Please tell us a little about what kind of volunteer activities you do for the SADS Foundation. (i.e. participation in SADS awareness campaigns, responding to advocacy action alerts, attending/organizing SADS events in your community, etc.)
I created a Facebook page to discuss LQTS, which has over 400 members in just 5 months; I was able to do a video with LQTS expert Dr Mike Ackerman of the Mayo Clinic; my wife made SADs part of the IBM charitable giving program
What is your favorite part about volunteering for the SADS Foundation?
It feels good to help others
Do you have any advice or final thoughts for others who might be interested in getting more involved with the SADS Foundation?
Everyone should!
Do you have any additional comments?
SADS is a great organization with some great people that I have had the pleasure to meet, and I appreciate all that they do.
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Volunteer to Fight SADS!
Volunteer Stories
Volunteer: Alicia Davis
Volunteer: Christine LeBlanc
Volunteer: Corinne Ruiz
Volunteer: Dan Alatorre
Volunteer: Diane Raynor
Volunteer: Janet Hackleman
Volunteer: Kaitlyn Moehlman
Volunteer: Keron Bailey
Volunteer: Koch Family
Volunteer: Linda Kirchgessner
Volunteer: Loren Brown
Volunteer: Melissa Meyer
Volunteer: Michael Harrington
Volunteer: Shannon Kiss
Volunteer: Shauna Hatch
Volunteer: Tami Everett
Volunteer: Trisha Stepkin
Volunteer: Veronica Jaime
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Warning Signs
Family history of unexpected, unexplained sudden death under age 40.
Fainting or seizure during exercise, excitement or startle.
Consistent or unusual chest pain &/or shortness of breath during exercise.