About Us

How We Help

We partner with families, medical professionals, researchers, and advocates to save lives by raising awareness of SADS conditions, supporting families living with a SADS condition or who have lost a family member, educating the medical community, and advocating for the best care.

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Our Programs

From support groups for teens, to physician-led webinars, medical education seminars, live Q&A with experts, an annual conference, and more, we provide programs to address: patient and family support services, physician and health professional education, public awareness, and advocacy & research.

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SADS Foundation History

The SADS Foundation was founded by Dr. Michael Vincent on December 12, 1991. As a pioneer in the identification and treatment of Long QT Syndrome, Dr. Vincent convened the top global experts in electrophysiology with community members and supporters to begin the work we continue today.

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The SADS Team

Get to know the SADS Team, including the staff and our Board of Trustees. You can learn more here about the people who guide our work —who are always striving to help families with SADS conditions live and thrive.

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Scientific Advisors

Get to know our Scientific Advisors, who are international medical experts – including doctors, researchers, and genetic counselors – working alongside the SADS Foundation to help improve diagnosis, treatment, and care for our community.

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News

For members of the media: access press kit materials, including fact sheets, information on SADS conditions, and brochures. And learn more about the faces of SADS by reviewing published stories of SADS in the news.

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Annual Reports & Financials

We are privileged to be supported by contributions from our families, friends, corporations, and foundations. Please feel free to read about our financials.

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Donor Recognition

We extend our most heartfelt appreciation to each of our donors at every level. We are delighted to list our donors here.

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Corporate and Foundation Partners

We are grateful for each of our corporate and foundation partners who help us to make critical programs possible for patient and family support as well as medical education. Check out this page to find out more about our partners.

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