SADS Spotlight: Brooke Spangenberg
Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy and healthy kid who didn’t complain much, so my mom immediately took me to a cardiologist when I first mentioned this. A...
read moreICD Stories: Genevie Echols
This is a photo of my girls and I when I was asked to speak at a fundraiser for a gala. I spoke on some of my patient experience. The money raised went to help build a hybrid cath lab to perform lead extractions safely. What SADS condition do you have, and when...
read morePregnancy Stories: Kellie Moore
Name: Kellie Moore SADS Condition: LQTS Type 2 Tell me a little bit about your journey with pregnancy and SADS. My daughter, Sophia, will be four in April. She was born in 2017. I really didn't have any huge concerns going in. It was just very exciting. But of course,...
read moreSADS Spotlight: Cynthia
Name: Cynthia Age: 58 years old Which SADS condition do you have? Type 1 LQT When were you diagnosed? Since 2008, over 10 years How are you treated? Toprol How/ when were you diagnosed? My diagnosis began through a routine primary care visit that discovered it through...
read moreSADS Spotlight: Amy
When something unusual came up on Amy’s ECG in 2019, she was anxious about what could be wrong. She was having panic attacks and feeling very low, and “not knowing what was wrong made [it] worse.” Amy waited 11 long months for her genetic test to come back, which...
read moreMy Long QT Story- A Journey
I was diagnosed with Long QT syndrome in July 2001, I was 23 years old. I decided to share my story in hopes that it may help someone in the future diagnosed with this same condition. When I was first diagnosed there was a girl my age that was also a...
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