SADS Spotlight: Alan London
In 1997, my wife and I had three kids. Our son Michael, who was eleven, had fainted twice. The first time, it was explained away by the E.R. and his pediatrician as a vasovagal episode from unusual activities. The second time, he got an EKG and was examined by a...
read moreSADS Spotlight: The Blum Family
In 1999, we got a phone call on a Friday from our son who lived on a college campus where his sister also went to school. We were on vacation. He said that his sister had passed away – he wanted to tell us before the police called us. Nobody knew why she had passed...
read moreSADS Spotlight: April
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT when I was eight years old, and was able to get genetic testing as an adult to identify that I have multiple LQTS Type 2 mutations. As a child in the ‘90s, the doctors knew very little...
read moreKiersten’s Story: Making a Difference
Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...
read moreSCA Survivor: Elisheva’s Story
“As with many Sudden Cardiac Arrests, I didn’t have any symptoms – it happened out of nowhere.” Elisheva’s Sudden Cardiac Arrest came without warning. She had been a runner for many years, and was in great shape – she’d just had a physical a few months before her SCA....
read moreEveryday Superhero: The Fischetti Family’s Story
Can you tell me a little bit about the SCA? John: Felicia was asleep on the third floor. Miraculously, she was able to wake up and call out to our daughter that she didn't feel good, and our daughter saw Felicia slump over. I was on the second floor, and our...
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