Name: Kaitlyn Miller
Age: 29
Which SADS condition do you have? Brugada Syndrome
When were you diagnosed? June 2019
How are you treated? ICD
How/when were you diagnosed?
I was diagnosed after passing out while in the car with my family. My EKG showed the typical Brugada pattern. I also had an EP study and positive genetic testing results.
What has been the biggest challenge you’ve faced in living with your diagnosis?
The biggest challenge has definitely been waiting for my daughters to be tested to see if they also have Brugada syndrome. Each of them has a 50% chance and waiting for results is not easy!
What is one positive thing that has come out of your diagnosis?
I have a new perspective on life since receiving my diagnosis. I don’t sweat the small stuff anymore and have realized that it’s important to live life to the fullest. My family is now able to be tested for the genetic mutation and my story may save the lives of my family members and others!
What encouragement or advice would you give someone who has just been diagnosed with your condition?
I would let someone who is newly diagnosed with a SADS Condition know that life goes on! As scary as receiving a SADS diagnosis is, you can still live a normal healthy life!
Update: Since this post was written, both of my girls have been diagnosed with Brugada Syndrome.
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