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LQTs, 504s, & AEDs

As a LQT patient-parent as well as an educator-advocate of students facing chronic medical conditions in a large school district, I have learned that “peace of mind” can go a long way in learning to thrive despite medical challenges.  We often feel sidelined by...

Holding My Breath

She appears “normal” and healthy on the outside. She does everything your 4 year old does. She laughs the same. She throws a temper tantrum the same. She thinks potty humor is the funniest thing ever just the same. She comes into your room 20 times every night before...

Selfies With AEDs

Do you notice AEDs in your community? If you’re at work, out shopping, working out or participating in your everyday activities – could you find the AED immediately if someone were to need it? I’m the mom of two girls with Long QT and I wasn’t in the habit of...